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Anyone take new drug Camzyos (mavacamten) for HCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 23 7:57am | Replies (770)
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@newtosohcm

Thank you for sharing your experience. I’m hoping the anesthesia team at UCSF will be better equipped to deal with any cardiac issues that might arise while I’m under anesthesia having knee surgery than at my local rural hospital. It’s just so hard to make these important decisions without adequate information i.e. risks vs benefits of having surgery 20 minutes from home vs 275 miles from home (without lodging or transportation!)
But, I’m very glad you had a good outcome!

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Replies to "Thank you for sharing your experience. I’m hoping the anesthesia team at UCSF will be better..."
Debra, Volunteer Mentor | @karukgirl | Dec 27, 2023

You're welcome. I don't blame you being in dilemma about this. Any surgery is stressful, and knowing how HOCM is would make it even more stressful. You need to trust the surgical team and have faith...the hospital I where I had my hysterectomy has great doctors and nurses. I was a little thrown off by Dr. Anesthesiologist telling me I could die. That was not fun! But I truly feel no matter where you have your knee surgery, the medical team would not go forward if it was unsafe.

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