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@karukgirl

Hi there @newtosochm, you ask a valid question.
I can share my experience with you. I had been misdiagnosed by my cardiologist with four different heart conditions before finally being diagnosed with HCOM in 2019. In 2015, I had to have a hysterectomy. I was in a really bad way and it was more than necessary. My doctor had me in for a pre-op visit. She listened to my heart and literally pushed herself away on her little rolly chair and exclaimed in shock there was no way I could have surgery. I had told her I have a mitral valve prolapse and a murmur. She said no anesthesiologist in town would put me under with a heart that sounded like that. My surgery was the next day. She made me go to my cardiologist and get a letter stating I was ok for surgery. I did.
The next day, in the hospital, the anesthesiologist came to my room for a pre-op visit. He told me he could not put me under, my EF and gradient numbers were terrible and I could die!
To say I was frightened is an understatement. My parents were sitting there with me and my mom was freaked out.
He told me he wanted to talk to Dr. Cardiologist first.
Then about 20 minutes later he came back and said Dr. Cardiologist told him I would be fine, just keep me super hydrated and that was it. Dr. Anesthesiologist wanted to err on the side of caution and he put in an arterial line to make him feel better.
I did fine! I had zero problems. And all this is before they even knew what I really had. I hope this helps you face your total knee with a little confidence. I share this to let you know that the medical team taking care of you will have the information they need to keep you safe. They would not operate on you if it was not safe. And I am far from a COE hospital too. UCSF is four hours from where I live. I hope this help you!

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Replies to "Hi there @newtosochm, you ask a valid question. I can share my experience with you. I..."

Thank you for sharing your experience. I’m hoping the anesthesia team at UCSF will be better equipped to deal with any cardiac issues that might arise while I’m under anesthesia having knee surgery than at my local rural hospital. It’s just so hard to make these important decisions without adequate information i.e. risks vs benefits of having surgery 20 minutes from home vs 275 miles from home (without lodging or transportation!)
But, I’m very glad you had a good outcome!