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Anyone take new drug Camzyos (mavacamten) for HCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 23 7:57am | Replies (770)
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@eltorro75

Hello dear people and fellow sufferers from Germany.

I will probably finally embark on the adventure with Camzyos in January. I have OHCM with a wall thickness of 27mm. I am too afraid of surgery, so I would like to try the medication instead.

Perhaps someone can answer my question: Currently, I am on the maximum dose of beta-blockers. Is there a chance that if Camzyos is effective, I can discontinue the beta-blockers? I am just under 50 years old, but my love life resembles that of a 95-year-old. 🙁
And I feel, that they change a bit my personality. I used to be quite fearless. But since taking beta-blockers, I have become a little girl. Hope you know what I mean, I don't want to be disrespectful to anyone.

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Replies to "Hello dear people and fellow sufferers from Germany. I will probably finally embark on the adventure..."
Debra, Volunteer Mentor | @karukgirl | Dec 27, 2023

Welcome to the Camzyos group on Mayo Connect @eltorro75. You posted in March that Camzyos was not available in Europe yet. I'm glad to hear you are now able to begin this treatment. There is a lot of information in this group, have you had a chance to read some of the posts?
Here is one talking about beta blockers and Camzyos. https://connect.mayoclinic.org/comment/886468/

@kelliw has had some experience with this and she shares her ups and downs with the group. @jaymaysea has also shared their story, each with a positive, honest perspective.
Reach out, we are here for you! Fear of surgery is real, but life is full of choices and risks. Is your cardiologist educated on HOCM?

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