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Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

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Mentor
Rachel, Volunteer Mentor | @rwinney | Sep 19, 2019
In reply to @olivia22819 "Thank you for that. Now do you have any side effects from the Botox or the..." + (show)
Profile picture for olivia22819 @olivia22819

Thank you for that. Now do you have any side effects from the Botox or the cambia ?

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No, I do not.

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migizii | @migizii | Sep 19, 2019
In reply to @peach414144 "To all of us migraine sufferers: I have suffered with migraines since my early twenties to..." + (show)
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To all of us migraine sufferers: I have suffered with migraines since my early twenties to about my sixties. All of a sudden I came to realize that the migraines stopped. When, how. BUT: I started to get many other physical ailments. Many. Not much better than having the migraines. But believe me I am so grateful not to have the migraines. How this happened I do not know.

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I have heard this from others, but I am still hoping....chronic migraine patient from my early teens and continuing today (64yr). Maybe one day as other chronic health issues have surfaced in the past few years.....

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migizii | @migizii | Sep 19, 2019
In reply to @olivia22819 "Thank you for that. Now do you have any side effects from the Botox or the..." + (show)
Profile picture for olivia22819 @olivia22819

Thank you for that. Now do you have any side effects from the Botox or the cambia ?

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I do not have side effects from the Botox and it has been very helpful in reducing the frequency and intensity of my migraines. However, it didn’t help until the third round of injections. I stuck with them because I had heard from others that some people are slow to respond, so I hung in there and it worked! I was so glad to get some relief!

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peach414144 | @peach414144 | Sep 20, 2019
In reply to @lioness "@peach414144 Hi Peach is this the same Dr. you have been going to or have you..." + (show)
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@peach414144 Hi Peach is this the same Dr. you have been going to or have you gone for a 2nd opinion Lind

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I have gone to so very many, many doctors. I am pretty sure that they do not know any more about migraines than we do. But who am I? Just another persons opinion. We must keep on. We must try to help each other and understand that the suffering can lead to depression and other ailments. We must try to understand and help each other however we can. With love peach

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peach414144 | @peach414144 | Sep 20, 2019
In reply to @olivia22819 "hi Peach414144, I’m glad to hear that you finally got relief and hopefully the other ailments..." + (show)
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hi Peach414144, I’m glad to hear that you finally got relief and hopefully the other ailments will go away too

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Thank you Olivia22319. At my age of 82 I think all the ailments will go away when I do. Just my way of continuing to complain. Almost like cursing. Headaches (migraines or not) is another horrible way to live. As the different ailments continue to grow more and more I say: "I AM FROM BROOKLYN AND I WILL PERSEVERE." ha, ha, ha, ha

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lioness | @lioness | Sep 20, 2019
In reply to @peach414144 "I have gone to so very many, many doctors. I am pretty sure that they do..." + (show)
Profile picture for peach414144 @peach414144

I have gone to so very many, many doctors. I am pretty sure that they do not know any more about migraines than we do. But who am I? Just another persons opinion. We must keep on. We must try to help each other and understand that the suffering can lead to depression and other ailments. We must try to understand and help each other however we can. With love peach

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@peach414144 I'm sorry your going through this . If I find anything out about migraines I,ll pass it on.. All we can do who are in pain is keep on ,keeping on.

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amazingteal | @amazingteal | Sep 20, 2019
In reply to @rwinney "Welcome and curious what took you so long? It's better late than never and I'm very..." + (show)
Profile picture for Rachel, Volunteer Mentor @rwinney

Welcome and curious what took you so long? It's better late than never and I'm very happy for you! All the best going forward.
~Rachel

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What took me so long? 2 countries, difference between country doctors and city doctors, an intense and rewarding marriage, not putting myself first,

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amazingteal | @amazingteal | Sep 20, 2019
In reply to @lioness "@amazingteal Wow that is a long time . Glad you are finally getting some pain relief..." + (show)
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@amazingteal Wow that is a long time . Glad you are finally getting some pain relief . Welcome to connect this is a great group to vent,listen to your problems and try to help with what we can. Hope you post again. What is your pain coming from ? Auto immune disease if you feel comfortable to relate your issue maybe if we know your problem someone maybe able to help with other things you can do for your comfort.

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Hi, lioness. My problem is both spinal and muscular. I had blood work done recently and there were no indication of RA. PCP indicates that this is an emotional issue. The original diagnosis was degenerative spinal disease at age 23.

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Mentor
Rachel, Volunteer Mentor | @rwinney | Sep 20, 2019
In reply to @amazingteal "What took me so long? 2 countries, difference between country doctors and city doctors, an intense..." + (show)
Profile picture for amazingteal @amazingteal

What took me so long? 2 countries, difference between country doctors and city doctors, an intense and rewarding marriage, not putting myself first,

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My hope for you...
Good things come to those who wait and
may you find over due, beneficial pain relief that you're deserving of.

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Mamacita, Alumna Mentor | @mamacita | Sep 21, 2019

Good morning everyone. My name is Jane, also known as Mamacita over on the Spectrummy page here on Mayo Clinic Connect. I felt like I needed to re-introduce myself due to my somewhat long absence from Connect.

I try to manage the kinds and amount of work that I do everyday so as to conserve the strength that I do have. DDD, Spinal Stenosis, Osteoarthritis, and Fibromyalgia try to slow me down with their flares and pain.

They had actually done quite a number on me, before I realised that I desperately needed to make changes. Now I am on generic Lyrica at night, along with Flexeril, as needed. The Fibro pain is gone, only the Arhritis to deal with. PT and warm pool therapy to follow.

My confidence level sank to an all time low during this time. I hesitated to write anything here. Took me a long time to realize that it was important that I reach out to the very people who had listened to me and encouraged me before.

Pain is a thief. Instilled in us all is a need for community to help one another, in large and small ways. This is my community. Thankful to be back.

Mamacita Jane

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