1. < Chronic Pain

Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Mentor
Rachel, Volunteer Mentor | @rwinney | Sep 19, 2019
In reply to @peach414144 "To all of us migraine sufferers: I have suffered with migraines since my early twenties to..." + (show)
@peach414144

To all of us migraine sufferers: I have suffered with migraines since my early twenties to about my sixties. All of a sudden I came to realize that the migraines stopped. When, how. BUT: I started to get many other physical ailments. Many. Not much better than having the migraines. But believe me I am so grateful not to have the migraines. How this happened I do not know.

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I bet you are! By far one of the most debilitating times in my life. All the best in those other disappointing areas of you health.
Rachel

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olivia22819 | @olivia22819 | Sep 19, 2019
In reply to @rwinney "Triptans did nothing for me! Began Botox every 3 months. After 6 months on Aimovig monthly..." + (show)
@rwinney

Triptans did nothing for me! Began Botox every 3 months. After 6 months on Aimovig monthly self injections, they stopped working. Many trips to urgent care for shots and steroid packs. Tried CoQ10 and other natural supplements to no avail.

Finally my neurologist switched me to Emgality self-injections, I continue botox and the best thing yet...he prescribed me Cambia which is a powder abortive medicine that is mixed with water and taken upon onset of a migraine.

Now I get only 3-5 migraines at most per month. It's a tough diagnosis and sometimes can be crossed with tension and other headaches. I wish you good luck and hope this helps if by chance you hadn't heard of something.

Rachel

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Thank you for that. Now do you have any side effects from the Botox or the cambia ?

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2 replies
Mentor
Rachel, Volunteer Mentor | @rwinney | Sep 19, 2019
In reply to @olivia22819 "Thank you for that. Now do you have any side effects from the Botox or the..." + (show)
@olivia22819

Thank you for that. Now do you have any side effects from the Botox or the cambia ?

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No, I do not.

REPLY
migizii | @migizii | Sep 19, 2019
In reply to @peach414144 "To all of us migraine sufferers: I have suffered with migraines since my early twenties to..." + (show)
@peach414144

To all of us migraine sufferers: I have suffered with migraines since my early twenties to about my sixties. All of a sudden I came to realize that the migraines stopped. When, how. BUT: I started to get many other physical ailments. Many. Not much better than having the migraines. But believe me I am so grateful not to have the migraines. How this happened I do not know.

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I have heard this from others, but I am still hoping....chronic migraine patient from my early teens and continuing today (64yr). Maybe one day as other chronic health issues have surfaced in the past few years.....

REPLY
migizii | @migizii | Sep 19, 2019
In reply to @olivia22819 "Thank you for that. Now do you have any side effects from the Botox or the..." + (show)
@olivia22819

Thank you for that. Now do you have any side effects from the Botox or the cambia ?

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I do not have side effects from the Botox and it has been very helpful in reducing the frequency and intensity of my migraines. However, it didn’t help until the third round of injections. I stuck with them because I had heard from others that some people are slow to respond, so I hung in there and it worked! I was so glad to get some relief!

REPLY
peach414144 | @peach414144 | Sep 20, 2019
In reply to @lioness "@peach414144 Hi Peach is this the same Dr. you have been going to or have you..." + (show)
@lioness

@peach414144 Hi Peach is this the same Dr. you have been going to or have you gone for a 2nd opinion Lind

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I have gone to so very many, many doctors. I am pretty sure that they do not know any more about migraines than we do. But who am I? Just another persons opinion. We must keep on. We must try to help each other and understand that the suffering can lead to depression and other ailments. We must try to understand and help each other however we can. With love peach

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1 reply
peach414144 | @peach414144 | Sep 20, 2019
In reply to @olivia22819 "hi Peach414144, I’m glad to hear that you finally got relief and hopefully the other ailments..." + (show)
@olivia22819

hi Peach414144, I’m glad to hear that you finally got relief and hopefully the other ailments will go away too

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Thank you Olivia22319. At my age of 82 I think all the ailments will go away when I do. Just my way of continuing to complain. Almost like cursing. Headaches (migraines or not) is another horrible way to live. As the different ailments continue to grow more and more I say: "I AM FROM BROOKLYN AND I WILL PERSEVERE." ha, ha, ha, ha

REPLY
lioness | @lioness | Sep 20, 2019
In reply to @peach414144 "I have gone to so very many, many doctors. I am pretty sure that they do..." + (show)
@peach414144

I have gone to so very many, many doctors. I am pretty sure that they do not know any more about migraines than we do. But who am I? Just another persons opinion. We must keep on. We must try to help each other and understand that the suffering can lead to depression and other ailments. We must try to understand and help each other however we can. With love peach

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@peach414144 I'm sorry your going through this . If I find anything out about migraines I,ll pass it on.. All we can do who are in pain is keep on ,keeping on.

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amazingteal | @amazingteal | Sep 20, 2019
In reply to @rwinney "Welcome and curious what took you so long? It's better late than never and I'm very..." + (show)
@rwinney

Welcome and curious what took you so long? It's better late than never and I'm very happy for you! All the best going forward.
~Rachel

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What took me so long? 2 countries, difference between country doctors and city doctors, an intense and rewarding marriage, not putting myself first,

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1 reply
amazingteal | @amazingteal | Sep 20, 2019
In reply to @lioness "@amazingteal Wow that is a long time . Glad you are finally getting some pain relief..." + (show)
@lioness

@amazingteal Wow that is a long time . Glad you are finally getting some pain relief . Welcome to connect this is a great group to vent,listen to your problems and try to help with what we can. Hope you post again. What is your pain coming from ? Auto immune disease if you feel comfortable to relate your issue maybe if we know your problem someone maybe able to help with other things you can do for your comfort.

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Hi, lioness. My problem is both spinal and muscular. I had blood work done recently and there were no indication of RA. PCP indicates that this is an emotional issue. The original diagnosis was degenerative spinal disease at age 23.

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