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Joint Pain after Organ Transplant
Transplants | Last Active: Apr 18 1:25pm | Replies (79)Comment receiving replies
Hello,
My liver transplant was in may ‘23. I’ve been telling my doctors for months that something is wrong. That I can’t go for long walks anymore. That all of my joints hurt from neck to toes. It is worse and unbearable in my left arm from shoulder to fingers. I thought it was bc I’m a lefty, Or bc I use to do hair, or bc I’ve bartended for over 20 years. My fingers feel broken and in some places feel on fire. I get shooting pains from elbow to hand and elbow to shoulder. My drs don’t know what’s going on so they have increased things like my tac, taken things away like prednisone. I thought I was the only one and I’m excited to find other ppl with the same issues. Can someone tell me what’s going on if they have any answers? I’m so delighted ppl are talking about this. I hope everyone finds the help they need and keep talking.
Peace and happiness
Replies to "Hello, My liver transplant was in may ‘23. I’ve been telling my doctors for months that..."
Good morning. Merry Christmas and happy New Year. I'm not a Doctor by any stretch of the imagination, but sounds like RA to me. Maybe ask for a referral to a Rheumatologist. You might get some answers. My liver transplant was October 2020.
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@eggnog24, Welcome to Connect, and thank you for your sign-off message of Peace and happiness! That is a great way to end a year like yours with your new liver, and to begin the New Year with your new life❤️
I hope that you have read though all of the messages in this discussion. I know that it will take a bit of time, however it is well worth the time to meet others and read their similar experiences with joint pain after transplant.
Eggnog24, I do not recall joint pain as being especially problematic for me, but I did need a lot of time to regain my endurance and muscle mass to do any amount of distance walking or hiking. One thing that I noticed right away is that I tired easily and needed to take a rest from activities because it was easy to overdo any activity. I also found out that I had some difficulty breathing when I went hiking and walking when my prednisone was lowered and then tapered. Upon referrals to specialist (cardiologist and pulmonologist) by my Primary care doctor, I was diagnosed with a form of asthma that had likely become activated by the meds.
Do you give your body ample time to recover after strenuous activity? Is it possible that an old, or hidden condition has been reactivated? And has your transplant team given you the permission to take an occasional Tylenol?
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@xplantguy1212 @grateful76 johnnybroom @tylererinm @gphetteplace @mfilson @muddlycrew @jovanna
How are you doing? Have you found any relief for the joint pain that you were experiencing?