← Return to Myelodysplastic syndromes (MDS): When do you need to start treatment?

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@janetlen

Happy Birthday! We turn 70 a few weeks apart. Mine is coming up just before the end of the year. I am a '53 model and you are a '54.

Did you have MDS before AML?

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Replies to "Happy Birthday! We turn 70 a few weeks apart. Mine is coming up just before the..."

Happy Birthday to you too, @janetlen. We’re both Classy Chassis, eh? 😉 Not sure I’m in pristine conditons though… there’s a few dings, dents and in need of some detail work. But I did have a complete fluid change. 😂

There’s no indication that I had MDS before developing AML. I’d had my physical in July of 2018 and blood panel was perfectly fine…no indication of anything amiss. (I’ve looked back in records just to make sure, now that I know what I’m looking for).
Sometime after that, by autumn 2018 something misfired. I had acquired 3 mutations that set the ball rolling. My local and Mayo oncologists have all said that this was random and I may never know what ‘event’ if any, precipitated these mutations. I didn’t even have symptoms until 3 weeks before it was almost too late…which started 1 day after my 65th b-day…happy bday to me, huh?

Did you have next generation sequencing done? It can be helpful in evaluating the potential risk for advancing MDS to AML.