1. < Chronic Pain

Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

karen00 | @karen00 | Aug 27, 2019
In reply to @eifeltower "Hi Karen It didnt help my nerve pain either Took it for 4 months strongest dose" + (show)
@eifeltower

Hi Karen
It didnt help my nerve pain either
Took it for 4 months strongest dose

Jump to this post

@eifeltower Hi Bonnie! Thanks for letting me know! I guess only the ones who had good luck with it were writing in so I never knew of anyone for whom it failed. Plus it’s expensive!!! I didn’t want to keep experimenting when it cost so much.... Karen

REPLY
karen00 | @karen00 | Aug 27, 2019
In reply to @artscaping "@karen00, @johnbishop This situation is disconcerting. Let's tackle the dosage first. Cannabis products must show MG..." + (show)
@artscaping

@karen00, @johnbishop This situation is disconcerting.
Let's tackle the dosage first. Cannabis products must show MG and the ratio of CBD to THC. In addition, if you are using a tincture there will be a dropper in the bottle and more and more I am seeing the mg printed on the side of the dropper just like in your kitchen measuring cup.

As to what dosage is right for you using a tincture distribution system.....that will depend on the time of day and whether you hold it under your tongue or blend it with your morning coffee. When the cannabis tincture is held under the tongue it passes through the porous membrane under the tongue. Results will be quick....10-15 minutes and will last about 3-4 hours. When you put your tincture dose in your beverage it will have to go through the digestive system. The results can begin to show within 45 minutes. If it has a second wind, more could be released. I haven't done this for a while but I remember this lasting about 3 hours.

So...now to the more difficult part. You need to have some help coming to a decision about the size of the dose. A couple of days ago, I actually counted the drops for a member so that she would understand. If you are using the dropper measurement that is easier.

For help with the amount to use, you need the help of one of the dispensary staff or a representative at the pain clinic or the pharmacy distributing it. The folks in the dispensary want to get it right so you will appreciate their service and trust their products. Let's say it is morning.....and you want to start off with a relatively pain-free day. You might choose a 1/4 dropper of 1:1 CBD/THC or a 1/2 dropper of 2:1 CBD/THC. You will be encouraged to start with less if this is your first experience and with less if you are testing a new product. Also, your body adjusts to the cannabis just like all other medications so you will need to up the dose at a later date. One company is now offering Cannabis "flights". There is a link below.

I think you will be seeing some better measuring options. I am happy to help with any questions you may have. My cannabis journey is about 4 years now. I have a pretty fail-safe system. A day with only cannabis for pain, the growing pain of small fiber neuropathy (SFN).

I am also going to attach a link to the current publication of Leafy. It is quite informative. I do want to respond to your statement about...."Am I the only one who isn't helped by CBD?"

The cannabis industry is in a boom stage. Organization, labeling, and information are left for later. Right now the dispensaries have to meet all of the regulations, maximize their inventory, never run out, and provide a positive customer experience. What also happens is that folks dose themselves with the wrong product, eg. Hemp Oil, and learn later that there isn't enough cannabidiol in the Hemp derivative. So....wrong product. The placebo effect also jumps in. Folks who don't want to be left out of the rising popularity of cannabis.....sort of makeup or embellish their results. Wrong purpose.
https://honestmarijuana.com/hemp-oil-vs-cbd-oil/
Thank you for stepping up and shouting it out........."this isn't working for me". We will be here for you. Chris

Jump to this post

@artscaping Hey Chris!!! It means so much that you took the time to explain things to me. I do have to buy on line so I didn’t have someone to help last time. I did have an awful experience with the taste of it! I used it faithfully, but dreaded dosage time! I read somewhere that they have pills???? Obviously it would be slower acting, but could be an option. So thanks again for helping! I’ll probably be bugging you again......Karen

REPLY
Mentor
Ginger, Volunteer Mentor | @gingerw | Aug 27, 2019
In reply to @kimspr3 "Hi Ginger, I don't understand why they have no information, guidance for you. May I try..." + (show)
@kimspr3

Hi Ginger, I don't understand why they have no information, guidance for you. May I try with your permission? name of you disease? I feel so bad.

Jump to this post

@kimspr3 It is not curable. Patients are in other countries [they think I am the only one in U.S.], and are far and few between. There is no impetus to do any research. It is an orphan disease. There are a few research papers only. I'm not worried. I maintain my kidney dis-order with good diet and mindful living.
Type III collagenofibrotic glomerulopathy
Ginger

REPLY
kimspr3 | @kimspr3 | Aug 28, 2019

Thank You Ginger, you seem to have everything under control and happy for you. Thank you the Information. Never to late to learn. Regards

REPLY
Jen, Alumna Mentor | @sandytoes14 | Aug 28, 2019
In reply to @artscaping "@karen00, @johnbishop This situation is disconcerting. Let's tackle the dosage first. Cannabis products must show MG..." + (show)
@artscaping

@karen00, @johnbishop This situation is disconcerting.
Let's tackle the dosage first. Cannabis products must show MG and the ratio of CBD to THC. In addition, if you are using a tincture there will be a dropper in the bottle and more and more I am seeing the mg printed on the side of the dropper just like in your kitchen measuring cup.

As to what dosage is right for you using a tincture distribution system.....that will depend on the time of day and whether you hold it under your tongue or blend it with your morning coffee. When the cannabis tincture is held under the tongue it passes through the porous membrane under the tongue. Results will be quick....10-15 minutes and will last about 3-4 hours. When you put your tincture dose in your beverage it will have to go through the digestive system. The results can begin to show within 45 minutes. If it has a second wind, more could be released. I haven't done this for a while but I remember this lasting about 3 hours.

So...now to the more difficult part. You need to have some help coming to a decision about the size of the dose. A couple of days ago, I actually counted the drops for a member so that she would understand. If you are using the dropper measurement that is easier.

For help with the amount to use, you need the help of one of the dispensary staff or a representative at the pain clinic or the pharmacy distributing it. The folks in the dispensary want to get it right so you will appreciate their service and trust their products. Let's say it is morning.....and you want to start off with a relatively pain-free day. You might choose a 1/4 dropper of 1:1 CBD/THC or a 1/2 dropper of 2:1 CBD/THC. You will be encouraged to start with less if this is your first experience and with less if you are testing a new product. Also, your body adjusts to the cannabis just like all other medications so you will need to up the dose at a later date. One company is now offering Cannabis "flights". There is a link below.

I think you will be seeing some better measuring options. I am happy to help with any questions you may have. My cannabis journey is about 4 years now. I have a pretty fail-safe system. A day with only cannabis for pain, the growing pain of small fiber neuropathy (SFN).

I am also going to attach a link to the current publication of Leafy. It is quite informative. I do want to respond to your statement about...."Am I the only one who isn't helped by CBD?"

The cannabis industry is in a boom stage. Organization, labeling, and information are left for later. Right now the dispensaries have to meet all of the regulations, maximize their inventory, never run out, and provide a positive customer experience. What also happens is that folks dose themselves with the wrong product, eg. Hemp Oil, and learn later that there isn't enough cannabidiol in the Hemp derivative. So....wrong product. The placebo effect also jumps in. Folks who don't want to be left out of the rising popularity of cannabis.....sort of makeup or embellish their results. Wrong purpose.
https://honestmarijuana.com/hemp-oil-vs-cbd-oil/
Thank you for stepping up and shouting it out........."this isn't working for me". We will be here for you. Chris

Jump to this post

Chris, Thank you for your valuable insight on CBD. Your expertise is appreciated 😊

REPLY
kodiac6919 | @kodiac6919 | Aug 29, 2019

Hello,
I'm Darin and i have chronic osteoarthritis pain in back, neck, shoulder and knees. I've tried many approaches and am surviving. I just need some moral and mental support from like minded survivors.We all have good days and bad but are always in need of an ear to bend and shoulder to lean on.Hopefully i can be both as well as receive.thanks for letting me join.

REPLY
3 replies
Mentor
Chris Trout, Volunteer Mentor | @artscaping | Aug 29, 2019

@kodiac6919, Welcome Darin. I’ve got a shoulder for you, It’s a replacement, That OK? We have a group of folks with lots of experience as patients and caregivers. We are not medically trained, Just want to be available for sharing and supporting the members of Connect. Of all the approaches you have tried, what has been the most helpful? I hope you are doing a bit better than surviving. Are you currently working with a medical provider?

If you are comfortable, please tell us a bit more about you. Are you working? Have a family? I look forward to getting to know you a little better. Be safe and protected today. Chris

REPLY
1 reply
lioness | @lioness | Aug 29, 2019
In reply to @kodiac6919 "Hello, I'm Darin and i have chronic osteoarthritis pain in back, neck, shoulder and knees. I've..." + (show)
@kodiac6919

Hello,
I'm Darin and i have chronic osteoarthritis pain in back, neck, shoulder and knees. I've tried many approaches and am surviving. I just need some moral and mental support from like minded survivors.We all have good days and bad but are always in need of an ear to bend and shoulder to lean on.Hopefully i can be both as well as receive.thanks for letting me join.

Jump to this post

@kodiac6919 Hello Daren . I have had osterarthritis most of my life . I have it all through me back,hips,shoulders,hands ,feet. I have tried all kinds of pain killers and with the new Dr. I have she put me on Meloxicam which does help .. But I also do meditation and mind over matter . I don't let it get me down . I keep busy doing things I love . I do Tai Chi and Qigong . But have days when nothing helps . This is my story and I'm sticking to it . Right now I have a fracture but not letting it bother me either . The other things I do are ice when its swollen Ice is also a anti inflammatory as Tumeric and ginger are also. Heat helps too Good luck As we age it is a challenge

REPLY
karen00 | @karen00 | Aug 30, 2019
In reply to @kodiac6919 "Hello, I'm Darin and i have chronic osteoarthritis pain in back, neck, shoulder and knees. I've..." + (show)
@kodiac6919

Hello,
I'm Darin and i have chronic osteoarthritis pain in back, neck, shoulder and knees. I've tried many approaches and am surviving. I just need some moral and mental support from like minded survivors.We all have good days and bad but are always in need of an ear to bend and shoulder to lean on.Hopefully i can be both as well as receive.thanks for letting me join.

Jump to this post

@kodiac6919 Hi Darin, You’ve got my support! When were you diagnosed? The good thing about Connect is that everyone seems to chime in and offer a shoulder. I have fibromyalgia, rheumatoid arthritis and osteoarthritis. My pain is concentrated in my shoulders, back, and knees, but with fibro, it can be everywhere. I see a pain specialist. Do you? .........Karen

REPLY
ken82 | @ken82 | Aug 30, 2019

To be clear about the "chronic" part .... I had an accident in which I dislocated a spinal vertebrae (L5) .. in the surgery required they removed all the arthritic growth, spurs, and impediments to moving painlessly ...but the major work was that they had to do a fusion of the adjacent vertebrae... the x-rays, CT scans, MRIs that I had before and after the repair gave me graphic knowledge of what the problem was and how it was fixed...I am doing so much better than my cohorts who have just lived with the problems that reduce effortless mobility... a good friend of mine who is just a few years younger was having so much back and leg pain ...for years she went to chiropractors, and tried it seemed she fought very hard to avoid getting the second and third opinions that could graphicly show her the extent of her structural problems... After she found out what was really going on she willingly took the physical therapy and is doing sooooo much better ... my professional work was as a University Professor... so I think "knowledge is power and that power is liberating." Good luck with your problem...

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