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MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio
Blood Cancers & Disorders | Last Active: Aug 3 1:59pm | Replies (203)Comment receiving replies
I just received some very alarming lab results, as was expected. I have given HealthTree, a non profit for multiple myeloma diseases, access to all of my medical records, and plan to call them after the first of the year. This organization has a very good reputation, and I am confident that someone will take the time to walk me through my labs. Every time I ask my hematologist a question, his "nurse navigator" responds with some kind of worthless answer/non answer. It has become so frustrating trying to get a straight answer from any of my clinicians, and I am sure I am not the only one. I refuse to go online and try to diagnose myself, even though I am very well versed in terms of medical terminology, lab results etc. But these free light chain labs are just too confusing for a layperson like me.
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I understand your frustration! I have had several different experiences from doctors- some are better than others at explaining our labs. It’s a lot of detail - I just want a concise & understandable summary of what’s going on.
Agree you should avoid dr google because everything sounds dire online. I’m so sorry you are having to wait for clarity! 🥹
Anyway- here’s my 2 cents:
1. Do you have a portal where you can ask questions directly to your doctor?
2. Not to be insulting but have you asked specifically for a consultation with your doctor to review results and ask questions? Telemedicine is great for this.
3.I’m a retired RN, but nurse navigators are way over their heads on stuff like this- and you deserve the doctor’s expertise & time.
4. There are educational tutorials on lab results via HealthTree .org you might get a better grasp of lab results and meaning of abnormalities.
5. Can you find a more responsive team in your area?
I imagine the holidays are part of the reason you haven’t heard back.