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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 21 hours ago | Replies (7049)
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@gingerw

@kimspr3 I'm glad to hear someone is getting information from NORD. I have an ultra-rare kidney disease [less than 50 in the world ever diagnosed with it], and they can offer me nothing.
Ginger

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Replies to "@kimspr3 I'm glad to hear someone is getting information from NORD. I have an ultra-rare kidney..."
kimspr3 | @kimspr3 | Aug 27, 2019

Hi Ginger, I don't understand why they have no information, guidance for you. May I try with your permission? name of you disease? I feel so bad.

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