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DiscussionPolycythemia: Does anyone have a problem with dryness?
Blood Cancers & Disorders | Last Active: Dec 25, 2023 | Replies (14)Comment receiving replies
Replies to "I am 73 year old, widow. No family near my location. Two years ago I had..."
Welcome to Connect, @mcvorbs. Blood conditions such as Polycythemia Vera can develop so slowly, with few symptoms, that they are often discovered randomly with routine blood work. Your primary care doctor was wise in referring you to a hematologist. However both of these doctors sound a little less than helpful. Isn’t that just so frustrating? You’d like answers!
You mentioned having the CBC and also a bone marrow biopsy. At some point were you told that there was a mutation with the JAK2 gene? If that’s the case, you wouldn’t really need another CBC to confirm it. The JAK2 gene mutation is generally the primary factor of blood of PV.
I’m sure you’ve done a fair amount of reading to familiarize yourself with PV, causes and treatments but I thought I’d toss out a few more articles for you that I find helpful and informational.
https://www.healthline.com/health/polycythemia-vera
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https://www.verywellhealth.com/jak2-mutation-5217909?utm_campaign=686803700-1172080423051232&utm_source=bingpaid&utm_medium=paid&utm_content=73255250357402&utm_term=o-polycythemia%20vera-Polycythemia%20vera&msclkid=c200be2a49eb1e036483dba2033067b0
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https://www.verywellhealth.com/polycythemia-vera-disorder-overview-2252550
Has your doctor suggested any treatment to keep your platelet level in a more normal range?
I have polycythemia as well. I discovered that my terrible itch and hives lasting about 30-minutes due to showers or any water on my skin stopped with long baths of 25-30 minutes. It works!
Rob