← Return to No Doctor can figure out what is wrong with me

Discussion

No Doctor can figure out what is wrong with me

Infectious Diseases | Last Active: Feb 14 8:15pm | Replies (34)

Comment receiving replies
@kcalby

Oof! Thanks for all that insight.
My mom “had” endo before giving birth to me - she had a couple miscarriages. I’m an only child because it was so hard.
I’m waiting on the gyno referal now and I’ll see what they say but I have SUCH bad urinary problems that I want to know if there endo there. Looking back at all the times I went to hospital for cramps as a teen and was mocked “you know this will happen every month right?” >> it would be foolish to not keep endo on the table. I am 36 definitely experience the most hormone problems since ever.
I did get an ultrasound during the 3 month period but it was at the end of the 3 months and during a spotting few days. The report said it showed a hemhorraging cyst, small, with light shadows or echoes or something. No calcifications or venous nature. But my gp said my scan was normal and never mentioned it. When my tailbone - lumbar spine was scanned for sacral pain the report said mild pudendal bulge: which she also didn’t mention and said my scan was normal.
Which sure maybe those things are normal but when you think I have a sensitivity disorder and other complex conditions …why WOULDNT all the little things matter? Maybe the mean more all layed out beside eachother? I find it funny that they find something where I have great pain and then say it’s not related?
I have also started getting mammograms because of getting a hard lump in my breast. My mom and I have small bewbs with dense tissue. Hers were described as ropey. My lumps they said they posit that it’s a fibroadenoma. Another likely inconsequential things but line that up beside potential cysts, pain, urinary probs, lower back pain, hormone problems, etc etc

I hate not respecting the intellect of the people in charge of my health, life length, and pain levels. Shits wild.

Not to mention things like growing up in constant pain (I think pandas/pots/sjorgens/postviralexposuresyndrome) having flesh eating disease at 16 causing cfs (they didn’t listen about that cuz I was a homeless teenager so obvi I lie and drug seek) then got hep c, amplified it all pelvic pain and tmj too, did interferon, and there came the fibromyalgia and myofascial pain. Etc etc and that’s not even close to everything but like come on - how can “scan was good” be the only answer. I want a doctor who likes to be a detective and has the time to be interested and curious.

Jump to this post


Replies to "Oof! Thanks for all that insight. My mom “had” endo before giving birth to me -..."

It is good that you made a gynecologist appointment.They can check for all of that.Fibroids can press against the bladder and cause all kinds of urinary issues.I do think that alot of Health issues are connected even though some doctors will dismiss it.If one thing is off in the body it can set off a bunch of other things.I hope that you get some answers after your appointment.