Wow you are absolutely amazing! That is a lot of learning you’ve done and a lot of advocating for yourself.
I don’t know Lems so I’ll look that up. I’m printing out medical texts for myself for Xmas haha
I’m so curious about something, my weirdest big symptom is that I get a brutal 3 month+ period whenever I get a corticosteroid injection. The first was tmj injections the same week I got my second dose Moderna and it overwhelmed my system and gave me a movement disorder and amplified all my internal experience problems like executive functioning, asd/ocd traits, anxiety, fear response, brain fog, etc. This was 2 years ago now, lost my job/house/partner and moved away to hide in the mountains where I can control my anxiety responses via isolation. don’t worry about me tho cuz I met someone and fell in love and am finally accessing medical care after being a vagrant since my teens. So things are looking up!
But I want to know if anyone else has experience a crazy heavy forever period with DEATH cramps (full body sweat, full fever plus chills, extreme pain, delusion, things ur going to poop and puke at the same time so bad u sit naked in the shower and ur limbs and eyes don’t work cuz u have to go to another world of shapes and colours to get thru the pain, then it passes. My partner took photos and I looked like I was in labor! I thought it was an hour and half and he said the whole episode it’s like 20 minutes. So it could be painful cysts bursting?)
I always leaned hyperthyroid I think of having suuuupet light periods so to go from not even needing to use more than like u tampon or pad per month to heavy huge clots was wild!
Looking for others with this extreme response to corticosteroid injections. Or anything relevant!
I bet you have fibroids or cysts.If one bursts it is the worse pain that you can experience.They can cause constant pain in your lower back and pelvis area too.Some will shrink on their own over time,but some will grow bigger and can burst.If you get an ultrasound it will show if you have cysts. Have you been checked for endemetrosis?That is harder to detect,but that can cause extremely heavy periods,cramps and constant pelvic pain as well.Endemetrosis can come on as you get older too.Around the time you are going through perimenopause because of the hormone shift.Some people change their diets or go vegan to balance their hormones which can help with regulating your periods.Stress will also wreak havoc on your hormones.Yoga,pilates or walking can help relieve stress.I always had bad cramps with my periods,but they were for the most part normal.A few years ago that completely changed and I had severe heavy periods that would last 3 weeks every month for 3 years.The Doctors could not figure out what was causing them.I just assumed it was perimenopause.I got the iron infusion because I became anemic and now I am in a worse situation than I started off.