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No Doctor can figure out what is wrong with me

Infectious Diseases | Last Active: Feb 14 8:15pm | Replies (34)

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@j77

Thankyou so much for responding!I am sorry that you are going through this as well.I was looking at Sjorgens as well as Mythias Gravis and LEMS.These three autoimmune diseases have many similarities.That is the difficult part is that there are so many autoimmune diseases and so many of them are similar.There are so many people in our Family with Lupus and I already have thyroid disease.The only thing I can think of is that the iron infusion,exercising in the heat and possibly covid set this off.I was so tired from those heavy periods for years and working in Healthcare during Covid it would not have taken much.It was like my whole body shut down and went into permanent fight or flight.I remember years ago before I was diagnosed with Thyroid disease my whole body pretty much shut down too.I know extreme stress can bring all of this on if you have a weak immune system.I just got blood work back and my numbers were high for steatosis,Nash,cholesterol and triglycerides,but I think that probably has to do with weight I put on.I use to exercise all of the time and now I can barely walk.My WBC Esterase was abnormal which could mean autoimmune or possible uti and my complement C3 Serum was elevated which could mean inflammation or infection in the body.I have had so much blood work and so many tests,but they are only finding little things.I am taking another long covid test.I had one through Quest Diagnostics,but apparently there is another one through labcorp that tests for more specific findings.I still have to go through genetic testing.Thankyou so much for letting me know about the podcast and Vectra blood panel.I have never heard of that kind of blood panel before.You are correct about the Doctors.They just don't have time because they have too many patients so you have to pretty much figure it out yourself.I have been trying to do my research.Before I was diagnosed with Thyroid disease I had been to about 15 doctors.Even the Best Doctor at John's Hopkins could not figure it out.Luckily a local doctor listened to me and put me on synthroid.I was better in a couple weeks.

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Replies to "Thankyou so much for responding!I am sorry that you are going through this as well.I was..."

Wow you are absolutely amazing! That is a lot of learning you’ve done and a lot of advocating for yourself.

I don’t know Lems so I’ll look that up. I’m printing out medical texts for myself for Xmas haha

I’m so curious about something, my weirdest big symptom is that I get a brutal 3 month+ period whenever I get a corticosteroid injection. The first was tmj injections the same week I got my second dose Moderna and it overwhelmed my system and gave me a movement disorder and amplified all my internal experience problems like executive functioning, asd/ocd traits, anxiety, fear response, brain fog, etc. This was 2 years ago now, lost my job/house/partner and moved away to hide in the mountains where I can control my anxiety responses via isolation. don’t worry about me tho cuz I met someone and fell in love and am finally accessing medical care after being a vagrant since my teens. So things are looking up!

But I want to know if anyone else has experience a crazy heavy forever period with DEATH cramps (full body sweat, full fever plus chills, extreme pain, delusion, things ur going to poop and puke at the same time so bad u sit naked in the shower and ur limbs and eyes don’t work cuz u have to go to another world of shapes and colours to get thru the pain, then it passes. My partner took photos and I looked like I was in labor! I thought it was an hour and half and he said the whole episode it’s like 20 minutes. So it could be painful cysts bursting?)

I always leaned hyperthyroid I think of having suuuupet light periods so to go from not even needing to use more than like u tampon or pad per month to heavy huge clots was wild!

Looking for others with this extreme response to corticosteroid injections. Or anything relevant!