@lillee
I am sure you are feeling like an experiment!
I also understand that you feel like they treat you like a drug addict.
I went to one pain doc who used to do a urine test at each visit....amazing!
I saw 4 pain docs before I found 'the one' and that was not until I moved to another state after I retired.
It is exhausting and your issues are certainly more involved than mine.
Given the circumstances, it sounds like until you move, help is not really going to happen.
The only suggestions I can think of at the moment is this....
1. Research the BEST hospital that is within your ability to get to. From there, check out all the docs that you think would be able to handle your situation and try to get an appointment.
2. Do things for yourself that might not 'fix' the problems but might make it easier for you to handle such as theraputic massage, warm water aquatics (even if it is PT), a therapist who specializes in pain management (I found a great one).
3. When you do move, find a state where you can possibly get the help you need.
Don't give up!!!!!!!
I know that it is hard to do, believe me, I wanted to give up lots of time.
I know how living in 24/7 pain can exhaust you body and mind.
Keep posting, someone might just have 'the' suggestion for you!!!!!

Have a great Saturday!
Ronnie (GRANDMAr)