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Chronic Pain members - Welcome, please introduce yourself
Welcome to the new Chronic Pain group.
I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Why not take a minute and introduce yourself.
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@jennyannsaal Welcome to Mayo Clinic Connect. We are glad you found us! We are all patients here; none of us are medical professionals. We can offer our experiences and share what has worked for us but we cannot offer any medical advice. Like @lioness I had to look up exactly what your situation is and oh my goodness! it must be a difficult struggle everyday! Not knowing where you are at can you turn to your County Medical Association for someone to help you? Or can you go to your insurance company or your medical group to find an advocate? Do you have a trusted friend who could accompany you to appointments and help ask the questions or listen to the comments to understand what is going on? Since this condition is the result of a an airbag malfunction are there any resources tied with the lawsuit that you could work with? In putting your private struggle on a public forum, you are allowing us to research in our heads what might be able to be done to assist you. We are grateful that you are here and trust us. Please continue to post and we'll keep trying to figure out some solutions you might try. I am asking @debbraw @grandmar @parus @hopeful33250 to pitch in any thoughts. I hope your evening goes well,
Ginger
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1 Reactionwell I great ear goes very far more than you think it does. I feel like a experimental patent a lot and lost trust in the medical field completely. I am treated like a druggie and even if I was no one deserves to hurt.98 surgeries my God can't they get it right. I am still got problems that need surgery but afraid. I wish I could find a great pain doctor. My last doctor got busted by the FBI and I am in Alabama so its even harder to find a good doctI am treated better.. We are planning to finish building our home and sell it and go somewhere that
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3 Reactionssomewhere I am treated better
I will say that pain management doctors have really failed patients anymore. They spend all they're time worrying about narcotics and covering they're butts. They forget about true pain patients that have never abused meds once. I had a pain doctors a couple years ago that I had been a patient with him for years. I had been using morphine for over 30 years without one issue. With the FDA new guidelines came out he told all of his patients he was stopping all patients narcotics. And I mean every patients overnight. The most ridiculous thing I have ever seen. Thank goodness I have an awesome mayo doctor that doesn't get all involved into the media hype. I pray you find a truely caring doctor that will help you. Because being in pain 24/7 can wear on you so badly. And it wears on you mental health so much too. But we're all here to help if you need it
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5 Reactions@lillee
I am sure you are feeling like an experiment!
I also understand that you feel like they treat you like a drug addict.
I went to one pain doc who used to do a urine test at each visit....amazing!
I saw 4 pain docs before I found 'the one' and that was not until I moved to another state after I retired.
It is exhausting and your issues are certainly more involved than mine.
Given the circumstances, it sounds like until you move, help is not really going to happen.
The only suggestions I can think of at the moment is this....
1. Research the BEST hospital that is within your ability to get to. From there, check out all the docs that you think would be able to handle your situation and try to get an appointment.
2. Do things for yourself that might not 'fix' the problems but might make it easier for you to handle such as theraputic massage, warm water aquatics (even if it is PT), a therapist who specializes in pain management (I found a great one).
3. When you do move, find a state where you can possibly get the help you need.
Don't give up!!!!!!!
I know that it is hard to do, believe me, I wanted to give up lots of time.
I know how living in 24/7 pain can exhaust you body and mind.
Keep posting, someone might just have 'the' suggestion for you!!!!!
Have a great Saturday!
Ronnie (GRANDMAr)
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3 Reactions@tazscott
Good Saturday Morning,
I do not think that docs are reacting to 'media hype.'
I think they are reacting to the legal system that has bound their hands.
We cannot expect doctors to do things that might land them with huge fines, loss of license or in jail.
As unhappy as these guidelines make me feel, in MY OPINION, I don't blame the docs.
There ARE pain patients who DO abuse their meds, I know a couple who do.
When I talk about 'abuse', I mean using more than is prescribed.
Could be the prescribed dosage no longer does its job, so taking more is a form of 'abuse.'
As I mentioned in another post, one of my former pain docs used to do a urine screening at each visit.
This was more than 5 years ago.
He must of had a reason.
For me, I've always been afraid of pain meds and used them VERY sparingly.
I'd be given enough for a month and maybe use one or two.
When I had spinal surgery, the doc prescribed pain meds in the hospital and for only a week or two after that.
I think media hype comes in when they say that their are less 'harmful' ways to deal with pain.
Let's remember that these legislatures 'react' to some things so quickly without thinking things out.
Also, we have to remember that it is lay people who make medical decisions from the insurance companies up to the legislatures.
Our medical field is certainly fractured and we need 'THE BEST' of the 'BEST' IN THE MEDICAL FIELDS to help make the decisions that impacts their patients (us).
Opppps, sorry, went off on a tangent.
Think I feel strongly about this???????? LOL
Best of the day to you!
Ronnie (GRANDMAr)
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2 ReactionsSo do I feel strongly about it. By the way Good Saturday morning to you. I have no trust with the medical field. It seems like I am paying for people who don't take their pain meds right. There are people who don't need it and sell it it makes me so mad because we the ones who need it have to pay for their crap. I just don't understand
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2 ReactionsI don't blame the docs but at some time they give ones who don't need the meds then look at me a double amputee after 98 surgeries with lupus and tell me that they can't give me anything because of others abusing it somethings wrong there ?
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2 ReactionsGod bless you Ronnie and thank you
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2 ReactionsThank you