Connect
← Return to Next course of action for undiagnosed polyneuropathy
Discussion
Next course of action for undiagnosed polyneuropathy
Neuropathy | Last Active: Jan 5 6:39pm | Replies (20)Comment receiving replies
@dthomasc
I wonder if you could have taken meds years ago that may have caused it. But I suppose medications have been ruled out.
Mine is believed to be caused from seizure medication, maybe so, but I must take those meds. I took them for 20 years before the neuropathy symptoms started. But the neuropathy and it's complications are better than daily or near daily seizures and being put in long induced comas.
I've had neuropathy for 35 years, what type and what caused it aren't important to me now.
But it sounds like you haven't had it very long so I'd check it out until I was convinced no one knows why. I'd go to Seattle or the Mayo Clinic. There is also a specialist at Stanford University who is an expert in neuropathy. I can't remember his name but I believe he's a pain specialist.
Best of luck to you,
Jake
Replies to "@dthomasc I wonder if you could have taken meds years ago that may have caused it...."
I think we all would like to know if the specialist at Stanford has any recommendations! My pain specialist has said he knows of nothing else to do for me except Tramadol and Pregabalin-he's tried an epidural-spinal cord stimulator-nothing has helped!! We all want anything to help!!
Connect
Hi, Jake. Yes, one of my primary care's first acts was to see if I was taking anything that could be causing it. He found a side effect buried down in the weeds of a medication I was on, so the initial plan (something that was in his power) was to take me off of it and see whether anything changed after the drug wash-out period. No changes. I still have not gone back on that medication, but it doesn't appear to be the cause.