PMR and exercise: What helps you?

Posted by jcaffrey47 @jcaffrey47, Jul 17, 2021

We are told that we have to stay active but what does that mean? This issue became very real for me when I attempted to swim the crawl stroke in the swimming pool. I was feeling pretty good at the time. The prednisone had kicked in and I swam the equivalent of two laps. The next day my shoulders were on fire and I was suffering a full flare; my first. Maybe everyone reading this will say that I was foolish to do any exercise that involve my shoulders and that I should limit my exercise to other parts of the body like walking or maybe biking. Let’s start a dialogue and find out what exercises work for all of us.

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

Thank you I will take a look.

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@johnbishop

Hello @edayvonne, Welcome to Connect. You will notice that we moved your post to an existing discussion on the same topic so that you can meet others with PMR discussing exercise. If you click the link below it will take you to the beginning of the discussion where you can learn what other members have shared:
--- PMR and exercise: What helps you?: https://connect.mayoclinic.org/discussion/pmr-and-exercise/

Do you have any daily routines that you have found helpful?

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Program on PBS early morning called Eccentrics by Miranda Esmond White. Wonderful stretches for shoulders hips etc. She was a professional ballerina so understands muscles and ligaments. I record for later in day. It is only 22 minutes long.

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I have had pmr for 2.5 years now. I am down to 3.5 mg of prednisone. I have had 2 flares that set me back the last one 3 months ago when I went to 3 mg.
During all this time I have not limited my activities, swimming, biking. Skiing and golfing. Motion is lotion. If you are taking enough prednisone to erase the daily inflammation you are ok if your prednisone is not enough to erase the inflammation yes you will hurt. We are all different so what works for one person may not work for another. Also we are all older in age and we can’t blame all our aches and pains on pmr as well I a person has been inactive for awhile then goes out and exercises sometimes the pain could be over use. Just one guys thoughts

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I read people saying that exercise is important, but what type of exercise are they doing? Is it cardio or is it resistance training?

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@paulwboy

I read people saying that exercise is important, but what type of exercise are they doing? Is it cardio or is it resistance training?

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I was never officially diagnosed with PMR but all my symptoms were text book PMR. M turning point to getting well ( as in all symptoms gone) was daily swimming. My pool gets very warm during the summer and it was absolute bliss to just paddle around in it. I think the gentle stretching of my muscles with no weight bearing is what did the job.

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A little of everything for me. Walking 2-4 miles a day, splitting and hauling wood for the stove for weight bearing and back exercise. I am trying to regain strength in my 75 year old legs that I lost this year from the pmr and treatment. Giving extra attention and stopping before I do too much is important.

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@paulwboy

I read people saying that exercise is important, but what type of exercise are they doing? Is it cardio or is it resistance training?

Jump to this post

Hello @paulwboy, I would like to add my welcome to Connect along with @cpd54 and @edwardh. You will notice that we have merged your discussion into an existing discussion on the same topic here so that you can learn what others have shared:
--- PMR and exercise: What helps you?: https://connect.mayoclinic.org/discussion/pmr-and-exercise/.

My own personal experience with PMR and exercise has been that just getting up and moving around doing stretches, walking and daily chores worked well for me when my PMR was active. I also did some light cardio and strength type exercises on a recumbent cross trainer bike I have at home. The main thing I learned was not to overdo the exercises or I paid for it the next morning with some extra aches and pain.

What kind of exercises do you like to do?

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When I was diagnosed in January 23, my doc knew that I do CrossFit twice a week and he was adamant that I should continue. I had no intention of stopping. So nearly a year later I am in my 7th year of CrossFit. I think moving and exercising are critical in dealing with PMR. CrossFit has bikes and rowers only. Your body is the machine in all the other movements.

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@skiing

I have had pmr for 2.5 years now. I am down to 3.5 mg of prednisone. I have had 2 flares that set me back the last one 3 months ago when I went to 3 mg.
During all this time I have not limited my activities, swimming, biking. Skiing and golfing. Motion is lotion. If you are taking enough prednisone to erase the daily inflammation you are ok if your prednisone is not enough to erase the inflammation yes you will hurt. We are all different so what works for one person may not work for another. Also we are all older in age and we can’t blame all our aches and pains on pmr as well I a person has been inactive for awhile then goes out and exercises sometimes the pain could be over use. Just one guys thoughts

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I am 77 years old and have been diagnosed six months ago, but I think I had it longer than that. I just didn’t know what it was. I cannot walk more than five minutes in the muscles around my hips tighten up. I was a runner and cyclist for years, and now I am pretty much stuck with exercising with some bands I take 10 mg of prednisone a day and it seems like it is not enough

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@johnbishop

Hello @paulwboy, I would like to add my welcome to Connect along with @cpd54 and @edwardh. You will notice that we have merged your discussion into an existing discussion on the same topic here so that you can learn what others have shared:
--- PMR and exercise: What helps you?: https://connect.mayoclinic.org/discussion/pmr-and-exercise/.

My own personal experience with PMR and exercise has been that just getting up and moving around doing stretches, walking and daily chores worked well for me when my PMR was active. I also did some light cardio and strength type exercises on a recumbent cross trainer bike I have at home. The main thing I learned was not to overdo the exercises or I paid for it the next morning with some extra aches and pain.

What kind of exercises do you like to do?

Jump to this post

When I was in my 40s and 50s, I would do 20 mile runs and 100 mile cycling events now I can’t walk to the car without being short of breath. I’m wondering if anybody else has a problem with the shortness of breath

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