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I have been diagnosed and under treatment for MDS

Blood Cancers & Disorders | Last Active: Dec 18, 2023 | Replies (16)
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@bonnieshaffer

@mjpm2406

I'm so sorry I missed your comment!

I've never heard of a Koch procedure either. If you happen to see this, please let me know how it went and how you are doing!

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Replies to "@mjpm2406 I'm so sorry I missed your comment! I've never heard of a Koch procedure either...."
mjpm2406 | @mjpm2406 | Dec 18, 2023

Hi Bonnie,

The Koch procedure looks for viruses and/or microorganisms in your blood. The results were negative. My bone marrow procedure confirmed my MDS/MPN-RS-T diagnosis. The molecular panel revealed another gene mutation- IDH1-R132H. Not a good one because this mutation has a poor prognosis and its a known onocogenic. In layman’s terms it turns healthily cells into cancer cells. This mutation is common in patients with AML. My Oncologist at Sloan ordered some additional labs to determine what is actually going on. So I wait - impatiently.

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