← Return to Appendiceal Neuroendocrine Tumor: any experiences to share?

Discussion
Comment receiving replies
@hopeful33250

I can understand your concern that about the POTS diagnosis, @maymaria. Any time there has been a cancer diagnosis, it is easy to relate everything to cancer. It sounds as if she is getting good care at this time, but please know that if you continue to feel concerned, you can always seek a second opinion.

Mayo Clinic has NET specialists at all three of their locations. If you would like to get an in-person or virtual consultation with a Mayo NET specialist, here is the link with appointment information, http://mayocl.in/1mtmR63.

If you are not able to get an appointment at Mayo for any reason, here is a list of NET specialists worldwide, https://www.carcinoid.org/for-patients/treatment/find-a-doctor/

I hope you find some peace of mind, now. I've had three surgeries for NETs in the upper digestive tract and I certainly understand how each new diagnosis or health issue can bring about fears of a recurrence of cancer.

Will you keep in touch and let me know how you are doing?

Jump to this post


Replies to "I can understand your concern that about the POTS diagnosis, @maymaria. Any time there has been..."

Thank you! Yes will do and update on any changes in case someone else goes down a similar path.