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Waldenstrom macroglobulinemia (WM): Deciding treatment options
Blood Cancers & Disorders | Last Active: May 25 10:43am | Replies (20)Comment receiving replies
Hi @nancyraskauskas. Thank you for sharing your experience with taking Rituximab and Bendamustine for your WM. It sounds like you had some scary side effects initially with the Rituxan. From my understanding, and personal experience with the drug, it usually subsides when the infusion rate is lowered drastically and given with Benadryl or steroids. I’m glad to hear you’re doing better now and both meds are doing the job!
Best wishes for smooth sailing with your infusion tomorrow. I’m sure you’re counting the weeks until this is over. ☺️
By the way, Welcome to Connect, Nancy. So happy to have you here! What brought you to the forum today? Were you searching for anything in particular?
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Hello. I often go to Mayo Clinic online when searching for information. I have 2 friends (husband and wife)are at Mayo. They check in with them every day. I discovered the discussion forum and wanted to see if others are having the same experiences as me and see if I can also offer up my experiences. You see, I am still having those same reactions with Rituximab after 6 treatment with it,even with the added pretreatments. The difference is I know exactly when they are coming on so I can get response dice meds into my system before the reactions escalate. My treatment yesterday went well as a result. I only had to interrupt the treatment for 2 15 minute intervals after the two reactions. I used to be wiped for 30 minutes to an hour after receiving the “antidote” meds before resuming treatment.