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My question was going to be how many IVs were restarted before a central line was placed. I didn't want to assume anything but weeks of vancomycin is tough! Not fun for the nurses either.
So Actemra is stopped ... are you back on prednisone? I'm not a fan of prednisone either because it nearly killed me. I was in intensive care for a few days.
I have stopped Actemra twice but I didn't do so well. I keep telling my rheumatologist that I'm willing to stop Actemra again just to see what happens. Three times is a charm they say.
Anyway ... I'm extremely sorry you had to go through all of that!
Replies to "My question was going to be how many IVs were restarted before a central line was..."
At least 3-4 were started before the central line. No actemra and no prednisone. I actually believe the PMR is gone. At least I hope so. My recent SED and CRP are elevated some, but I don’t feel typical PMR symptoms. I think it may due to some leftover pleural effusion from the pneumonia.
I was on Actemra for a year before stopping. I had tapered very slowly off prednisone after starting the biologic.
I had PMR for five years and was told by a university of Iowa doctor that it usually “disappears” in 1-5 years. Fingers crossed.
Hoping the same for you. Freedom from the disease and all associated medications.
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A central line was never placed. After hospitalization on Vanco by mouth. A couple more doses then finished.
Not on prednisone.