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Just diagnosed with colitis...given Budesonide $$$$

Digestive Health | Last Active: Jan 10 3:29pm | Replies (50)

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@debhammel

I'm just starting to taper off the 9 mg dose and am hoping to have the same experience you had! I, too, understood that it is best for microscopic colitis, and agree that it's a miracle drug. My GI doc says if necessary I could stay on a low dose almost indefinitely. Apparently a large percentage of us do so - perhaps 3 mg every other day or so. We're all so very different in what we need and what works to manage this disease!

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Replies to "I'm just starting to taper off the 9 mg dose and am hoping to have the..."

Mine said I could go back on it at low dose if necessary - and that means I tried immodium etc - he really doesn’t want me on it continuously even low dose.

But I really don’t need it. I’m going the other way now. I’m on low dose statin and because my GI tract is like freaking Goldilocks, where everything has to be just right, even just influence of the statin has me on fiber and stool softeners.

What I’d give for normal 🙄