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Essential Thrombocythemia (ET): foods, diet, nutrition?
Blood Cancers & Disorders | Last Active: Sep 15 8:03am | Replies (112)Comment receiving replies
I am so glad some patients get info on HU at time of prescription. I didn't, and nurses were dismissive of my questions. Pharmacist and cancer hotline in another hospital system provided info.
Tidbit I learned at my hemo appt last week: HU keeps platelet production lower, which in turn slows or arrests fibrosis in bone marro that causes the bone pain folks sometimes experience.
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... I should have added that the doc told me this when I asked why I was started on HU when my platelets were only in 700-800 range. I often hear that some docs let CALRs like me go to 1,000 before they start HU. Aside from the fact that I was 65 and therefore at moderate clot risk, she said that slowing platelet proliferation slows the fibrosis in the marrow in patients who are showing an upward trend in platelet levels.