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DiscussionCan anyone share their bone marrow transplant caregiver experience?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Dec 18, 2023 | Replies (51)Comment receiving replies
Replies to "Good Morning @loribmt. Thank you for checking back in with me! But first, may i take..."
Wow, @cupofsunshine! So much is going on for you it’s making my head spin! 😲 I’ve read through all three of your responses several times to make sure I got everything! First, I’m happy to hear that you’re doing well on the new meds and able to delay the transplant. There have been some health improvements too with the rising hemoglobin and no bone pain! It’s awesome to hear you’re able to be active again. I am very sorry about having to step back from your enjoyable life with the goats on the farm. But maybe in the future that life will return to you…baby steps in getting back to good health.
It sounds like your brother is maybe stepping up to the plate to be a donor if he matches? It’s very safe for the donor to do this so I hope, if he’s a match, that he does go through this for you. Be The Match is a wonderful organization to help with this process. It would be good to get all your little duckies in a row in order…just in case.
Being able to find a caregiver was fantastic! I’m happy you were able to get this woman on board if you need the transplant. It’s imperative to have a caregiver! There’s not really a great deal of personal/physical care you’ll need but just to have someone with you if you’re feeling weak, to help with meals, to chauffeur and accompany you to appointments at the clinic. I’ve heard of some people tag-teaming family members if they can’t have one dedicated person for the entire length of time. Keep me posted on what transpires!
Have you looked into lodging options for transplant?
I happened to *FINALLY* find a really nice lady at church to help me get through my transplant (for pay). Because I'm single and have no family around (they are all west coast), my initial struggle was because my family (mom is almost 80 and just barely survived stage 4 breast cancer a few years ago, sister and brother are working full-time)...they wanted me to move back to California and do my transplant there. Initially my sister supported me with doing it at Mayo in Rochester. My road to bmt has been exceptionally hard and difficult this year. The Mayo drilled me and drilled me and drilled me and screened me at least 4 or 5 times about my caregiver situation. I have an aunt who lives in the cities area who can do one week each month for the first three months. And then my sons father was going to pitch in a week each month and then my mother said she would do the first two weeks. And i got so fed up with everyone changing their mind that i decided to just hire someone and try to find the money to pay.