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Vietnam Veteran: Brain tumor after prostate cancer

Brain Tumor | Last Active: Feb 5, 2023 | Replies (14)

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@taml

Thank you for sharing. My brother just had brain surgery to remove a tumor and necrosis caused by radiation of that tumor. 1 week ago. Left side weakness getting stronger but his ability to figure things out is bad. Like takes his shirt off to change his pj bottoms? And anger issues. Did you have these problems at first. This is his 4th surgery. 1st 3, over 10 yrs, were on right side. This time through top of head, more center. He's in therapy till Dec22. He was in IT. His ability to organize was his life.
Have you had radiation? He's been married since his wife was 16, 45 yrs. They've always been super close. So this is hard on his wife. Just wondering did you have these bad effects before things start to get better? I've read about doctors at his point that are now doctors again. Thanks so much for sharing your story!

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Replies to "Thank you for sharing. My brother just had brain surgery to remove a tumor and necrosis..."

I have a frontal and wait and watch. Doctor suggests radiation. Sounds better to me than craniotomy. Very hard devious to make.

When you say the top of his brain, what area? If it's the frontal lobe, it controls intellectual activities like organization, behavior, emotions, and personality. I've had tonic-clonic frontal temporal lobe epilepsy since I was 10, with my 1st surgery at 11 years old from benign tumors that were in my R temporal lobe. I've experienced those types of things, as well as many of my patients. My mom actually put me in DCFS group homes when I was about 12 or 13 due to those things & said it was because she couldn't take care of me anymore. Then when I was 19, she put me in nursing homes saying the same thing. I've never had radiation, but after my last 2 surgeries in 2008, which included almost a whole lobectomy, I had emotional problems as well as being frusterated with the people in the nursing homes, but after about 8 months of recovery, I moved back out, became an advocate for people with disabilities, did motivational speaking, worked in homecare, then took Electroneurodiagnostics during covid and now work in 2 hospitals. It's very much a struggle, but not having support, like I didn't have, is the hard pat, which is why I began doing what I do. Each lobe of the brain controls different things, so the location of the abnormal activity will give the reason for a personality change, etc and proper treatment, therapy, meds, etc might take time to work properly. Our hospitals do intracranial surgeries to help with precise locations of activity and cause