Chronic Pain members - Welcome, please introduce yourself

@liz223.... Funny, but not....a uti, is so uncomfortable it may trump stroke headaches, TOS, fibro, and trigeminal all at once! The burning and ache are so acute. Feeling for you, pain in back and bladder is NO fun. No fun at all.

@liz223 Hi liz welcome to our caring group. Ive had fibromyalgia for over 30 + years we that have it all know how you feel. Dr. had be on all the fibro meds know of them helped and on 2 had side effects, so started to research elsewhere. A fibro group said that med. research stated we need more magnesium I take 600mg a day and my ct is still within the limits , Also when I hurt I use Ice ,heat , Tens unit when my muscles are tight . I love my Tens unit. light exercise is good it may hurt but does help your muscles. I had 11 of 18 pressure points and nothing helps them . This is hard for sure. The other thing is learn to say No to things that hurt you. Be kind to yourself. We here learn from each other . hope you have a good day

Hi, my name is Skip, I wish there was a section for Cauda Equina Syndrome within the chronic pain section. It's such a rare disease to have it's hard finding others who have it. I had back surgery in June and had a blood clot that compressed the nerves at the nerve root witch caused me to have this terrible disease. My pain Doctor only allows me to take 40mg of morphine twice a day and 30mg of Percocet every 4 hours. It helps some with the pain but I wish it helped more. I'm In a significant amount of pain with the meds. She has stated that the amount I'm on is a huge amount. With all due respect I told her she's wrong. They wanted me to change the script to 1 40mg pill instead of two 20 mg pills. Wish I never went down that path. Between the ins comp. Dr. office and Pharmacy we have spent hours a day for more than a week and a half trying to clean up the mess that it has caused, just ridicules, I'm now almost out of Morphine because of this issue. Need to start calling again tomorrow because the pharmacy can't get a 40mg tab of Morphine. So now it has to start all over again and go back to 2 20mg pills. What a mess it has become to just get pain meds because of the opioid crisis. Not my fault People abuse it to get high. Maybe People who do so should realize that they not only hurt themselves, family, and friends but millions of People that need them to help with severe pain. My pain Doctor has diffidently underestimated the amount of pain that is attributed to Cauda equine syndrome. They have never had anyone with this condition and I'm kind of a Guiney Pig. They don't even no if it's safe for them to give me injections????????????? All I want is help!

Hello, i just joined today. I’m suffering with Rhumatoid Arthritis, chronic daily Head aches, and fibromyalgia. It started 10 yrs ago with a severe HA that never has gone away. Having new symptoms with my liver. I feel very alone. My loved ones are supportive. That’s me in a nutshell

@aceswild4 Welcome to our group of caring ,supportive people I'm sorry your in so much pain I can only speak to fibromyalgia I've had it since the early 90,s I can tell you with all the ups@downs you,ve got to be tough don't let from bro win altho some days it feels it has .I found using more magnesium then other people is very beneficial .A research found we are deficient in magnesium I use Mag.hydroxide 600mg .A Tens unit for muscle tightness ,ice ,heat when really hurting a hot shower also Epsom Salts soak There will be others talking about RA @grandmar can help with o.a.the Dr gave me Meloxican which helps Wishing you well

Hi I'm Renee I have a rare pain disorder, it's kinda like phantom pain but everywhere. I have a spinal implant in my back that helps , but sometimes it doesn't help. I'm glad you joined, there are great supportive people in the chronic pain group. I'm always up for listening. We understand how hard it is to live like this. Try anything you can to keep your mind off of things. I like to color and read at 45 I never thought I'd be saying that. I was diagnosed about 2 years ago.

I felt so horrible when I read your post. I know little about your disorder other then it's related to pressure points in your spine. I try and look up other people 's conditions, so I can be informed when talking. I'm Renee and also have a rare pain disorder that effects the whole body. I totally understand about the pain. Unfortunately mine is more like phantom pain. I feel it like a knife ripping me or burning me. Except there isn't anything there. I got a spinal implant that controls the pain in my arms and hands. But stress and weather mess with it bad. It's now in my spine. So my doctor put me on medical marijuana , just to ease the pain. I would recommend it for anyone in pain! It gives you a little lift and ease. It's legal I live in Philadelphia. I've used capsules and vape and I am not ashamed to get some relief and neither should you!!! Talk anytime you want, I'll always listen. Best of luck!!

Please unsubscribe me. I"m involved with a number of these type groups locally. I really don't have time to review these e mails or contribute anything. You are doing a very helpful service. Keep it going. Incidentally, You may want to check the unsubscribe function on the website. It doesn't work.
Joan Zanuskey

Actually, nothing trumps trigeminal. Nothing. But still, uti's are no pic-nic. As soon as symptoms arise, if I act quick enough, I drink a couple quarts of water over a couple hours and many times it will flush urinary system. If I can avoid antibiotics, and a doctor visit I'm happy. Of course there's always cranberry juice, but I find the water more effective because I can drink more of it, faster, for quicker results. If I don't act quickly, a uti quickly turno into kidney infection for me, which is much worse!

Hello. I am an 82 year old female. Four months ago I had a back operation. I now have two rods and eight screws. Four years ago they put spacers in my neck. I have pain in neck and shoulders. I also have pain in lower back below the operation area. I am functioning. Praise God. They fused five discs and it was successful.