Hi, my name is Skip, I wish there was a section for Cauda Equina Syndrome within the chronic pain section. It's such a rare disease to have it's hard finding others who have it. I had back surgery in June and had a blood clot that compressed the nerves at the nerve root witch caused me to have this terrible disease. My pain Doctor only allows me to take 40mg of morphine twice a day and 30mg of Percocet every 4 hours. It helps some with the pain but I wish it helped more. I'm In a significant amount of pain with the meds. She has stated that the amount I'm on is a huge amount. With all due respect I told her she's wrong. They wanted me to change the script to 1 40mg pill instead of two 20 mg pills. Wish I never went down that path. Between the ins comp. Dr. office and Pharmacy we have spent hours a day for more than a week and a half trying to clean up the mess that it has caused, just ridicules, I'm now almost out of Morphine because of this issue. Need to start calling again tomorrow because the pharmacy can't get a 40mg tab of Morphine. So now it has to start all over again and go back to 2 20mg pills. What a mess it has become to just get pain meds because of the opioid crisis. Not my fault People abuse it to get high. Maybe People who do so should realize that they not only hurt themselves, family, and friends but millions of People that need them to help with severe pain. My pain Doctor has diffidently underestimated the amount of pain that is attributed to Cauda equine syndrome. They have never had anyone with this condition and I'm kind of a Guiney Pig. They don't even no if it's safe for them to give me injections????????????? All I want is help!

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