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Essential Thrombocythemia (ET): foods, diet, nutrition?

Blood Cancers & Disorders | Last Active: Sep 15 8:03am | Replies (112)
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@ldz

I too would like information on foods.
I researched the foods not to eat and they are all the foods I love.

I found out I have high platelets with Jak 2 and have been on 500 Hydroxyurea every other day since June. The platelets went down for a few months and then the past three months they have increased. My Hematologist dr has increased the 500 Hy to everyday now.
I did ask the dr this week, I do not know why the platelets are increasing, is it food that I am eating? She did not think so. I am still wondering.

Any suggestions?

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Replies to "I too would like information on foods. I researched the foods not to eat and they..."
hariom1961 | @hariom1961 | Dec 17, 2023

Appreciate your doubts and views. Me even on HU for last one year and platelets count is 920. Dr increases and reduces the doses as per count . Now HU 500 twice a day and ecospirin 75 mg daily being taken .
In your research which food you found those should not be eaten ? Sugar , alcohol, and fried food I know should be avoided but besides those ?

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christinele | @christinele | Dec 17, 2023

What are the foods you should not eat? Every time I look it up I find conflicting answers.
I read somewhere that quinine water lowers platelets.

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debhammel | @debhammel | Dec 19, 2023

I was just diagnosed last month and my hematologist/oncologist explained that it is not uncommon for platelet levels to fluctuate. I was taking 500 mg twice a day every day and was just reduced to taking this 5 days a week. Regular blood tests are key to monitoring and adjusting dosing as needed - it is not unusual for platelet levels to fluctuate and I don't think anyone knows why they do. Good luck on your journey!

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