Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Stephen | @wsh66 | Feb 25, 2019

In reply to @vklittle61 "This sounds like what I need so bad" + (show)

Where do you live? If you want tell me where you live and I'll ask my doctor if he knows anybody who is doing the pump in your area. PS it's covered by Medicare

Chris Trout, Volunteer Mentor | @artscaping | Feb 25, 2019

@asnowflake, Congratulations. It sounds like you have figured out the best way for cannabis options to work for you. I also welcome the calming, pain free times that can be yours when including THC as well as CBD in a vape cartridge or even a tincture. Wishing a pain free day tomorrow for you. Chris

anniebrook | @anniebrook | Feb 27, 2019

In reply to @frank1 "Hi, my name is Warren. I have dry eye disease, whose cause has yet to be..." + (show)

I'm a 65yr old female who had always struggled even in my 20's with contacts whichever ones I tried but was never diagnosed with dry eye. When I was 49 I decided to get cateract surgery as opposed to laser due to that causing dry eye in some people who didn't have it before. Over the yrs that followed ( probably due to my age and having fibromyalgia) my eyes were constantly gritty. In my 50's I was diagnosed with Glaucoma by an eye surgeon here in Nanaimo,BC who told me I had really bad 'Dry Eyes'.After a long discussion about how long I had felt this awful condition which was worse when I had to do my 2 X 12 hr shifts on night as a nurse he Px me Restasis eye drops,It has changed my life. I have been using them now for about 9 yrs and have gone down from twice a day to once a day. I always carry around some OTC drops for those odd days when they might still feel a little dry of I get a bit of mascara in my eye. They are expensive but the eye Dr gives me a discount card when I see him once a yr which gives me 3 boxes at half price.

anniebrook | @anniebrook | Feb 27, 2019

In reply to @tompet "Hi, my name is Tommy and I have several chronic diseases. I am not living in..." + (show)

@tompet

Hi, my name is Tommy and I have several chronic diseases. I am not living in the US and am moving from Singapore back to my home country Sweden. I was first sick in 2001 in Sweden and got wrong diagnose and disability pension in 2004. In 2005 I moved to Singapore and the climate made it a lot better so I started working and cancelled my disability pension. But it got worse and I haven't been able to work for some years and I got help from the health care system here after ending up in the emergency.

It has taken time and the first diagnose was that my knees was worn out and that I had multiple polyarthritis and was put in a wheelchair. I got physiotherapy in warm water and it has helped me a lot. Now I am diagnosed with fibromyalgia, arthritis, chronic sinusitis and chronic pelvic pain syndrome as my prostate and urine bladder gives me problems. On top of that my left lung is collapsing, I have Meckel's Diverticulum (a pocket on the colon) and when they examined that, colonoscopy, they found the beginning to colon cancer. At this time it was benign but they could not see the whole colon clearly and want it to be done again in Sweden. Like that wasn't enough I also had a heart attack 26 August last year with following surgery and in the middle of November I was back to hospital with heart problems. My heart was beating to slow and irregular. Tomorrow I will be admitted for a sleep study as I suffer a lot from insomnia.

I also have an abusive marriage and starved so I lost 25 kg and was diagnosed with malnutrition. Thankfully I got help from the social welfare so I could at least eat one meal a day. I am very thankful for the help I have got here in Singapore; they have done a lot for me. After several years of struggle in court I finally got help from legal aid and am getting a divorce from my wife and can return to my home country. I have tried to leave before but my wife has stopped me and now I have to leave because I will lose my PR because of the divorce.

But I have nowhere to go. I am going back to a place I have lived before but because of the refugee situation in Sweden there is no housing available. Even the health care system is trying to make it hard for me to come there. I have a daughter and grandchildren there and my daughter is helping me but fighting with the bureaucrats is horrible. I just have to go there and just hope they will help me otherwise I will end up on the street without health care. The catch 22 is that I can't stay with my daughter because then they will say I don't need help. The Swedish system is for refuges not for helping returning citizens. And they misdiagnosed me before. I hope I at least can refill my medications as I am not allowed to take everything with me into the country and I so badly need a wheelchair. Hope I can get help with it.

Sorry for writing so long but I am in a lot of pain and the situation is desperate so I need all the input I can get. Thank you.

Jump to this post

I hear you Tommy. I am British where there used to be a fantastic free health system ( NHS ). My husbna dand I are 65/66 yrs old and have live in Canada for the last 14 yrs.We are thinking of going back to England but I have many problems too,Chronic Pain from Fibromyagia, Arthrits etc .Due to all the Illigal immigrants and people going to UK to just use the NHS then go back to their own country especially women to have babies our NHS is in the toilet. At the moment I have a great teIam at the pain clinic here so I am so worried about going back as my 3 daughters who are still in UK tell me they can't even get an appointment with a GP without having to wait for weeks. I had to wait over a yr here to get into the pain clinic and I am very worried I would be without treatment for what could be a lot more than just 1 year. Does anyone on here have that experience and how to get around the wait if we go back.For instance can a Dr at the pain clinic contact a Dr at a pain clinic there to just pass on the info to get me in without a wait?

lioness | @lioness | Feb 27, 2019

In reply to @anniebrook "I'm a 65yr old female who had always struggled even in my 20's with contacts whichever..." + (show)

@anniebrook I also have dry eyes but do OTC gtts the Dr. never said I need Restasis but now I have a lot of gritty eyes especially when I wake up my eyes feel like sand in corners. I'm going to ask her next time about Restasis since my eyes are constantly like this somedays I have to put in the drops 5 times. I wondered if there was some help with the price .

bonnieh218 | @bonnieh218 | Feb 27, 2019

In reply to @lioness "@anniebrook I also have dry eyes but do OTC gtts the Dr. never said I need..." + (show)

I use Testasis every day. The manufacturer offers a great deal IF you have no insurance or you’re not on Medicare. A person isn’t eligible for any prescription discount cards if on Medicare. I’ve spent lots of time checking that out.
I have insurance but it was still $366.00 per month. So, I went online and scouted for a local pharmacy offering a cheaper price. I discovered that Walgreens was only charging me $47.00 a month after insurance. That’s still a lot but relatively speaking it’s a lot less than what other pharmacies are charging. I guess it pays to shop around.

bonnieh218 | @bonnieh218 | Feb 27, 2019

In reply to @bonnieh218 "I use Testasis every day. The manufacturer offers a great deal IF you have no insurance..." + (show)

Oops! I mean Restasis. Wish we could edit these things.

lioness | @lioness | Feb 27, 2019

In reply to @bonnieh218 "Oops! I mean Restasis. Wish we could edit these things." + (show)

@bonnieh218 I knew what you meant you can edit after you hit reply on the left side is an edit click on it

seanivor | @seanivor | Feb 28, 2019

In reply to @user_chc48c0aa "Hi, my name is Allan, I have been diagnosed with ilionguinal neuropathy from hernia surgery. I..." + (show)

Hi Allan, I have exactly the same condition, I am flying in bed at this moment with a sore left groin and a numb cold left leg and desperately seeking help, it would be good to communicate with you ? I live in the south of Ireland, Sean

seanivor | @seanivor | Feb 28, 2019

Hi I'm Sean, I have inguinal nerve entrapment which has led to chronic pain, my symptoms are a sore inflamed left groin area which comes with continued standing and walking, this leads to coldness & numbness down my left leg and pelvic pain , I was also diagnosed with small fiber nephropathy .
I have a spinal cord simulator since 2012.