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Essential Thrombocythemia (ET): foods, diet, nutrition?
Blood Cancers & Disorders | Last Active: Sep 15 8:03am | Replies (112)Comment receiving replies
Hi @nancyr,
When I started HU I was immediately given an information sheet from Chemocare explaining everything about HU. It did mention sun exposure and skin cancers. I have also done a lot of research on the Mayo Clinic and MPN sites. I am very prone to skin cancers and see dermatologist twice a year. I am taking 500 mg HU four days a week. I agree, I am not worried about getting it below 400.
May I ask what immunotherapy cream you use? Also, did you have palpitations again restarting Anagrelide? My hematologist has mentioned Anagrelide but I have been reluctant to take it as my AFib seems to be under control. I do take a blood thinner for AFib.
Many thanks, Eileen
Replies to "Hi @nancyr, When I started HU I was immediately given an information sheet from Chemocare explaining..."
I am so glad some patients get info on HU at time of prescription. I didn't, and nurses were dismissive of my questions. Pharmacist and cancer hotline in another hospital system provided info.
Tidbit I learned at my hemo appt last week: HU keeps platelet production lower, which in turn slows or arrests fibrosis in bone marro that causes the bone pain folks sometimes experience.
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For my skin cancer I used immiquod cream which allow the body to attack the cancer cells. Immiquod is generic for Aldara.
Yes I did experience palpitations but I was also prescribed diazepam which I used for the first month or two and now don’t need it
My numbers are generally about 600
My hem is fine with that and does not want to increase dosage to get my numbers into the 400’s because of its affect on the heart.
I am very active and do not have any side affects at this time. I do not have Jak 2
You are taking a pretty low dose of HU.
I was taking 500 2x a day.