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JAK2 Mutation - Effects and Questions

Blood Cancers & Disorders | Last Active: Jun 19 5:59am | Replies (303)
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@jerrlin

I have the same situation and my oncologist put me on hydroxyurea 500 mg a day. Within 2 weeks, my platelets dropped from 337 to 57. He has taken me off hydroxyurea and new blood tests in 2 weeks. I asked him your question and he told me that I am at high risk of blood clots because I have the Jak 2 and the drug helps protect me from that. Does anyone have any other information?

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Replies to "I have the same situation and my oncologist put me on hydroxyurea 500 mg a day...."
dherrman2 | @dherrman2 | Dec 18, 2023

I was dx 14 years ago. I have been taking 1000 mg of Hydrea everyday. My Feritin is 4 and my red cells and platelets are very high.
I have phlebotomies whenever I start to feel bad, other than that, I have been ok. I am always tired.
Not sure why my feritin is so low, but my dr. Has said that is normal.

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