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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Sep 19 12:31pm | Replies (818)

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@nancyworld

@dazlin, were you able to discuss your foot pain and fatigue with your Primary? I don't know what tests you had to confirm MGUS, but maybe they should delve a little deeper. For instance, you could get nerve testing (EMG/NCS) to determine whether your symptoms are due to neuropathy, and if so, what sort of damage is occurring and to which nerves. That can make a difference for diagnosing the plasma disorder and for treatment.

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Replies to "@dazlin, were you able to discuss your foot pain and fatigue with your Primary? I don't..."

@nancyworld , I did see my primary this past Tuesday. He saw the lump on my foot, and says it's on the bone from calcification. Asked if I injured or fractured my foot. I said no. As for my burning aching feet, sometimes legs if I'm standing too long, he believes it can be back related. He showed me a stretch for my foot to help loosed up the ligament...thats about it. The fatigue I feel, didn't seem to prompt him for any further tests. If my foot becomes more troublesome, I'll book myself a podiatrist. Dr says they'll probably boot it, and thinks that's worse. No explanation and rules out neuropathy....labs from mayo are only showing slight mgus, all else is good....not diabetic either.
So basically, I'm back on my own, doing what I feel is best for me...no one really understands the fatigue I get...literally wiped out. I'm also learning to pace myself, and take breaks. I have a tendency to want to keep going and get a thousand things done in half a day. Thanks for asking...hope you're doing well!