Tymlos is unaffordable and cardiologist says no to Evenity. What now?

Posted by nancy69 @nancy69, Dec 7, 2023

I switched health plans because Tymlos was on the formulary but when I got the co-pay info it was astounding. Between the Eliquis which I take for AFIB and the Tymlos, I will be at $8k by June 2024 with start date of 01/24. Any reco's?

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@milkweed

Really? That’s great news. If you have additional info that would be great too

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There is another company also producing Teriparatide under the name Bonsity. It was FDA approved in 2019.
https://www.drugs.com/history/bonsity.html

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Bonsity dropped the name and is marketed as teriparatide. Alvogen is the manufacturer.

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@windyshores

There is now a generic form of Forteo (teriparatide).

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Yesterday my insurance company said that they would no longer pay for Forteo. I called Dr Mannstadt’s office and left a message for him. I was supposed to receive the Forteo pen next Wed. Since they have no prescription for me for the generic Teriparatde they will not tell me what my cost will be. I can not find a patient’s assistance program. I was on a program with Lily for Forteo. Can you help me?

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@janflute

Yesterday my insurance company said that they would no longer pay for Forteo. I called Dr Mannstadt’s office and left a message for him. I was supposed to receive the Forteo pen next Wed. Since they have no prescription for me for the generic Teriparatde they will not tell me what my cost will be. I can not find a patient’s assistance program. I was on a program with Lily for Forteo. Can you help me?

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Mannstadt's office can change the prescription to generic, I hope. Do you use the patient portal? Phone calls work too but it can take a couple of days. Sorry you are dealing with this.

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@janflute

Yesterday my insurance company said that they would no longer pay for Forteo. I called Dr Mannstadt’s office and left a message for him. I was supposed to receive the Forteo pen next Wed. Since they have no prescription for me for the generic Teriparatde they will not tell me what my cost will be. I can not find a patient’s assistance program. I was on a program with Lily for Forteo. Can you help me?

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https://connect.mayoclinic.org/discussion/forteo-costs/
me75
In reply to @leeosteo "ymv, thanks for the quick response. I've been on Medicare one year. I just picked a..." + (show)
You can get it through R X Advocates. Even though Lilly doesn't give it to people with Medicare, RX Advocates can get it for you for 70.00 a month. The price will depend on your yearly income. Their phone number is 1-844-559-8332, and the website is RX Advocates.com. I hope this helps.
goodbones | @goodbones | Aug 25 10:07am
If you are not on government assisted insurance you can contact Eli Lily's co-pay assistance. I was going to have to pay $4300 with insurance–with this co-pay assistance it is $4!!! I asked why this couldn't be the same amount for everyone–they had no response…
lkel | @lkel | Nov 13 5:45am
Did you apply to LillyCares? My income is much higher that 78K and LillyCares fully covered all 24 months of my treatment (I just finished in September). I didn't think they would cover anything but my doctors office kept encouraging my to apply.

It is something like a Tier 3/4(?) drug so the max income is quite a bit higher.lkel | @lkel | Nov 14 2:54pm
In reply to @06111945cc "I went to Lillycares. I spoke with their representative who told me Forteo was a group..." + (show)
I applied through my Dr.'s office. It has been just over 24 months. The income level was $178K. I renewed last year with no problems. (And just got a renewal application but do not need it.)
janflute, if you are already on the Forteo, you'll be safe for a while until this get straightened out. It is terrible of the insurance co not to cover at least this last pen. I hope you have luck with one of these. Might be less expensive than your co-pay with generic Forteo--teriparatide Alvogen.

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