← Return to IVIg Infusions for autoimmune neuropathy
DiscussionIVIg Infusions for autoimmune neuropathy
Autoimmune Diseases | Last Active: Dec 15, 2023 | Replies (29)Comment receiving replies
Replies to "@jshdma, I'm sorry to hear that you haven't found anything that helps with your symptoms. I'm..."
@johnbishop Tjhanks for your info. Indeed I have consulted numerous docs here in NYC and also in Boston. Neurologists here and also rheumatologists did tests, all came out negative.
Doc in Mass General described it as an "evolving syndrome that must be treated,." But they did nothing. I go back to Boston in Feb to another neiurologist. My sense is that there is some kind of auto-immune disfunction, mostly because as it continues it affects one body part or organ at a time, so it is traveling through my entire body. At this point it seems that only my brain is OK (but who knows for how long ?).