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IVIg Infusions for autoimmune neuropathy

Autoimmune Diseases | Last Active: Dec 15, 2023 | Replies (29)

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@johnbishop

@jshdma, I'm sorry to hear that you haven't found anything that helps with your symptoms. I'm not sure anyone here can answer all of your questions but they are certainly good questions to ask. Do infusions work is a depends questions for me. I think it depends on the condition you have and other related factors could make a difference if they work or not. I think insurance coverage is definitely a question to find out before getting an infusion. Your doctor or insurance company should be able to answer that one. I think it may depend on the type of infusion and what condition is being treated. I've had several different infusions but none related to neuropathy or vibration type symptoms. I've had one for iron deficiency anemia and a few at the ER and hospital for a blood clot. I can't say that any of the infusions were painful but maybe a little uncomfortable at the time.

Are you able to seek treatment or a second opinion at a teaching hospital or major health facility?

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Replies to "@jshdma, I'm sorry to hear that you haven't found anything that helps with your symptoms. I'm..."

@johnbishop Tjhanks for your info. Indeed I have consulted numerous docs here in NYC and also in Boston. Neurologists here and also rheumatologists did tests, all came out negative.
Doc in Mass General described it as an "evolving syndrome that must be treated,." But they did nothing. I go back to Boston in Feb to another neiurologist. My sense is that there is some kind of auto-immune disfunction, mostly because as it continues it affects one body part or organ at a time, so it is traveling through my entire body. At this point it seems that only my brain is OK (but who knows for how long ?).