1. < Lung Cancer

Non small cell lung cancer (NSCLC) RET+ anyone?

Posted by loriwt @loriwt, Dec 13, 2023

I was diagnosed in June 2022 and started targeted therapy (Retevmo) in July 2022. Anyone else RET+ and on Retevmo or similar?

Interested in more discussions like this? Go to the Lung Cancer Support Group.

Mentor
Lisa, Volunteer Mentor | @lls8000 | Dec 14, 2023

Hi @loriwt!, Welcome to Connect. I don't have RET, but I do have ALK, another of the gene mutations. I also take a targeted therapy, Alectinib. I was diagnosed in early 2020, and I'm still on the same medication. I'm glad that these medications keep progressing, I really believe that I wouldn't be here without it.
Has the Retevmo controlled or reduced the tumor/s? Are the side effects manageable for you?

REPLY
1 reply
loriwt | @loriwt | Dec 14, 2023
In reply to @lls8000 "Hi @loriwt!, Welcome to Connect. I don't have RET, but I do have ALK, another of..." + (show)
@lls8000

Hi @loriwt!, Welcome to Connect. I don't have RET, but I do have ALK, another of the gene mutations. I also take a targeted therapy, Alectinib. I was diagnosed in early 2020, and I'm still on the same medication. I'm glad that these medications keep progressing, I really believe that I wouldn't be here without it.
Has the Retevmo controlled or reduced the tumor/s? Are the side effects manageable for you?

Jump to this post

Thank you! It's so hopeful and encouraging to hear you're still doing well on your treatment. I am very thankful for the research that has been and continues to be done to help people like us.

The Retevmo has shrunk all tumors and the side effects are very minimal so far.

REPLY
Please sign in or register to post a reply.