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Concerns over sternal discomfort post Heart Transplant

Transplants | Last Active: Jan 27 9:14am | Replies (11)

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@exhcmposttx

My cramps are exactly the same. They are sometimes among the most painful things I have ever experienced. I tend to yell out when they are at their worst which freaks out my wife and kids! My hands go on lockdown and have a life of their own almost. I don't get them as often as I did a month ago and now they seem to come on when I'm using my hands a lot, like when playing guitar or typing on my tablet. I keep rwo tennis balls close by when I'm at home and I've narrowed the cause down to the tacrolimus or the Cellcept. I have done three things: 1. My transplant team switched me to Envarsus which is a time-released tacro. That made the tremors a bit more manageable, but they still happen. 2. I take a magnesium supplement. You may already know this but mag is just as important as potassium, and some of the transplant meds cause a deficit in both. 3. I drink a can of diet tonic water sometimes when the cramps come on. It contains quinine which is an old folk remedy for cramps. For me, it's effectiveness is questionable but one of my transplant docs said many liver and kidney recipients swear by it. Like I said, my cramps have lessened but they still happen a few times a week-mainly in my left hand. I would think the first thing would be to check your magnesium. I not sure if Gatorade would contain enough to help a serious deficiency. Anyway, that's my two cents. I hope you find some relief. That was one of the more intense side effects that no one warned me about.

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Replies to "My cramps are exactly the same. They are sometimes among the most painful things I have..."

I have been on magnesium supplement (6 pills a day) plus i eat walnuts (high in magnesium). From my blood work between the two, my magnesium is ok. Before I started supplementing with the walnuts, my magnesium was low. However, the tennis balls is a good idea to try.