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Mysterious shortness of breath: What has helped you?

Lung Health | Last Active: May 27 5:58pm | Replies (3353)

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@jasullivan3

Thank you for your quick response. I've reviewed all the comments and really appreciate this forum.
This happened following an upper respiratory infection, possibly Covid, although my test results were negative. However, I did experience a loss of taste and smell for over a week.

Initially, I suspected asthma, but I quickly realized it was unrelated. My primary care doctor, leaning towards asthma, prescribed steroids, which unfortunately made the SOB come on worse.

I then saw a pulmonologist who conducted a lung function test ruling out asthma, COPD, and other common respiratory issues. She couldn't definitively diagnose but suggested possibilities such as an allergic reaction or anxiety. I don't experience frequent anxiety, and the symptoms don't fluctuate. My sleep is fine, and mornings are generally symptom-free. The SOB tends to come on toward the day's end. Interestingly, two of my siblings have encountered similar issues—one persisting for years, while the other's symptoms went away after a few weeks.

I appreciate your insights. I'm currently seeking a specialist at a major hospital in Chicago, but my search has been somewhat challenging. Any suggestions for what type of specialist to see? From reading these forums it does appear that this does become more manageable which is good to hear..

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Replies to "Thank you for your quick response. I've reviewed all the comments and really appreciate this forum...."

It sounds like it's possible that it could've been caused by getting Covid, but not for certain. I've heard of something called "long Covid" where some the symptoms either linger for a long time after the onset of initial symptoms or it leads to other symptoms that linger over the long term.

Yes I believe there are many ways to deal with the issue and improve it over time, and maybe even eliminate it.

Have you been able to exercise or do you normally exercise and how does the breathing issue affect that?