Hi @jasullivan3, sorry about what you're going through. Did this come on suddenly? Anything you think happened that could've caused the onset of symptoms?

For your tests have you gotten a lung function test done?

I definitely hope that this isn't going to be your life going forward either. While it was a struggle for me for some time, I've been able to manage the symptoms and live a normal life though the issue hasn't gone away completely. It does seem to be improve little by little as time goes by.

It sounds like you started with your primary care doctor, which is a good place to start. Then from there, they order tests or recommend specialists for further evaluation. I had multiple tests done myself early on and most everything came back normal. If the breathing issue persists, that's when I would look into what other tests could be done until you've done all the tests you can do.

It's definitely a large thread with lots of responses from people. Some people have come to a solution for theirs, others deal with it still, and some others have done various things to improve the condition. If you have time, it would be worth it to skim through a few pages of the comments to see what others have said. There's probably too many to get through each comment/page, but at least skimming through a few might give you some ideas.