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New and undiagnosed

Posted by yvonne55 @yvonne55, Sep 7, 2022

Just spent 10 days in hospital. Never had a lung problem but did have GERD briefly. Suddenly couldn't breathe. No air! Blacked out. In hospital received 100% oxygen. Slowly weaned and sent home. Got a "maybe" diagnosis of Interstitial lung disease. Im on no oxygen. Drs said I didnt need it. At rest 02 is 93%. Getting up out of bed and 02 dips 88, 85 %. Drs seem unconcerned. I'm scared! Am I chained to my bed for life? Are my 02 sats ok to go that low as long as they come up?

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Mentor
Sue, Volunteer Mentor | @sueinmn | Dec 12, 2023
In reply to @yvonne55 "Hello Sue! Been thinking of you. Just got results from my latest ct scan and pulmonary..." + (show)
@yvonne55

Hello Sue!
Been thinking of you. Just got results from my latest ct scan and pulmonary function test. The function test was "great". 6 min walk was "perfect". Lung scars are stable and were post infectious. They do not suspect ipf or anything like that. Im working full time but unfortunately not in my chosen loved field of health care. Dr suggested getting out as hes not sure how strong my immune system is and care homes and hospitals are the germiest places. So I was working with handicapped adults run by staff but not enough hours so I do that and work at a major supermarket. I'm always on the run. And doing a lot of stair work. No passing out nor dizziness. Respirologist still wants me to lose 40 lbs but 60 are off now. The ground glass opacities and nodules are gone. I did catch a cold but had no breathing problems. My hair is slowly growing back. I asked the pulmonologist if taking collagen is safe but he admitted he didn't know. I was taking it for 2 years before my pneumonia and it worked wonders. My gp didnt know either.
Does anyone know if collagen is safe for lungs that have had a beating but come back?
The last time I took my 02 Sue it said 98%. I then put it away permanently. THANK YOU for all of your words of encouragement especially when I was in panic mode!! 🙏🙏

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Hugs! and more hugs, Yvonne. You have made remarkable progress.

Wow, all that activity has really helped with the weight loss I bet - and overcoming your anxiety is great news. Yes, lungs recovery is slow, but you seem to have made it.

I am so happy for you - and that you tossed that Pulse Ox in the drawer.
Please keep me updated on your progress.
Sue

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