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Hi Elizabeth @ess77, There are a couple of other discussions you might find helpful if you are new to PMR.
– PMR Diet: Foods to eat and avoid: https://connect.mayoclinic.org/discussion/diet-and-pmr/
-- PMR Dosages and Managing Symptoms: https://connect.mayoclinic.org/discussion/pmr-dosages/
The prednisone provides relief from the pain caused by the PMR and GCA or at least it's supposed to at the right dose. Dosage can depend on body weight and symptoms (I think). Hoping you can get it under control quickly. I think the problem a lot of us have had is trying to taper off of prednisone too quickly when we really need to listen to what our body is telling us. It helps to keep a daily pain/symptom log along with your dosage of prednisone for that day.
Replies to "Hi Elizabeth @ess77, There are a couple of other discussions you might find helpful if you..."
@johnbishop and all...Well, POOH! I took the last Prednisone yesterday. Tapered and began increased pain for couple days, then awoke last night at 1 a.m. in the PMR specific pains, with a vengeance. I'm afraid I exacerbated this with ice cream! Drat! Won't happen again!
Sent doc info portal message at 2 a.m. got message I'm starting prednisone today.
This is really fun...It took me totally by surprise and knocked me for a loop. A tough disease...I'm tired of the waterfall of diseases that keep coming. Guess I'll just keep on one tiny step at a time. Or, rest in bed ...no steps...the links were great and helped me understand about this thing. Thanks.
Blessings, Elizabeth
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@johnbishop, and all...Thank, John. I took my last Prednisone today. Been in bed most of day and yesterday, although did too must last evening and ended up with sweating and other symptoms returning. Went away after doxycyline pill and nightime meds. Yuck.
The pain is greatly improved, so we'll see how the next couple of days go re pain with no prednisone.
The doctor is staying in touch and wants daily portal reports on symptoms, energy, activity, etc.
Thanks for the links. I'll check them out now.
Oh, the doctor says this may be a post-covid response. He thinks probable but we need to check carefully. I will get back on prednisone if it gets worse. I've taken that med since diagnosed with Sarcoid at 40, have a true love/hate relationship there. But, it's saved me many times. We just deal with the side effects and move forward.
I've already adjusted my diet based on this discussion...
Blessings, Elizabeth