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@saustina

Hi all - made an account just for this thread. Been experiencing exactly these crusts for the past few years, but it’s only recently become more prevalent, like daily sloughing off of the crusts. I read all the same articles mentioned here and was pretty sure I’m dealing with Thornwaldt’s cyst (crust type). Nasal irrigation every night and that gets it for me. First ENT I saw did a endoscopy and found nothing. Sent me home with Flonase. Did not use cause I read that didn’t work for other people. Saw a 2nd ENT and what would he happen to find but the pesky crust just sitting there in the midline of my nasopharynx. He said it’s definitely indicative of Thornwaldt’s. Poked at it and it’s very stubborn. Worth noting he used a rigid scope which I think works better at finding these things cause it goes straight back. It also helped that I had done research and told him where to look, so be your own advocate at these appointments and mention Thornwaldt’s by name. He’s had patients with Thornwaldt’s before so that’s encouraging. CT scheduled for next month to confirm and then we’ll go from there. He mentioned surgery if it’s cystic. If it’s just the crust type, I guess I’ll ask about the electrocauterization. Anyway, hope this gives people a little hope!

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Replies to "Hi all - made an account just for this thread. Been experiencing exactly these crusts for..."

Great that your ENT said it's indicative for Thornwaldt. Mine does not.. but when I had nasoscopy the crust wasn't there so that sucked. Do you experience thick mucus as well at that same spot? I'll actually have to remove the crust and the excess mucus with my finger daily to get some relief. Had a CT scan, all clear. But I talked to another girl whose problem turned out to be thornwaldt just like she suspected, CT also clear, they finally saw it with MRI. Just so you know :). And I'm gonna request MRI as well at my next ENT visit. Sooo done with this. Wish you the best and please update!