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Post Interferon Syndrome

Infectious Diseases | Last Active: Dec 8 6:35pm | Replies (538)

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@kevins1interferon

I wish I found this sooner. I took interferon in 1997 for 40 weeks, the side affects were horrible, I couldnt do the 52 weeks. I did respond quickly and labs looked good for a few months, then I had to start Ribavirn/interferon around 1999. it seemed to have worked, my labs are normal, I am now on liver transplant list from HCC that developed on my liver. I had an embolization 2 years ago that seems to have killed the tumor, but they tell me it has only bought me time. The past 20+ years my body has been in pain, I push through it and still work, my memory is shot, my co worker say I suffer from CRS (cant remember sh:t) I still get chills as is I just took interferon injections 10 min ago, they are the worst, just happens randomly. good luck to all of you

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Replies to "I wish I found this sooner. I took interferon in 1997 for 40 weeks, the side..."

Have you taken the antivirals available for hep c? Is that what you have? I did the interferon, then interferon with ribaviron. So tired and achy for the whole time. Depressed sometimes too. Did not clear the virus. Finally got antiviral in 2019. Cleared the virus early 2020. Got HCC like you as a result of liver cirrhosis caused by the hep c. Had ablation but haven’t made the two year mark yet. I am on the transplant list but inactive due to good liver function and no new tumor. Wishing you the best.

I was diagnosed with HCV 2B in January of 2000...2 weeks after my 37th birthday...So much for the great outlook for the new Millenium...You are the first person who has posted about ongoing random chills/fevers as an ongoing side effect...After 17 yrs with me MY DOGS even wake me to take Advil if the chills/sweats don't...SMH. GOOD LUCK & BLESSINGS TO YOU.

Yep, all of us who have taken the Hepatitis-C treatment of Interferon and Ribavarin are suffering. How many times do we ALL need to complain and tell the medical community how debilitating post treatment really is? Yes, we “signed” the box warning, but dang! There were no other treatments as there are now. We are not asking for a miracle cure, just comfort us and acknowledge that the symptoms are real and treatment should include pain management and understanding about the brain fog and organ failure (my thyroid has failed) and other symptoms which give the need for long term care. Hepatitis-C treatment has ruined many lives and marriages. (The cure is killing us‼️) If doctors or the medical professionals cannot face the fact that we were medically compromised by the treatment of hep-c with interferon and ribavarin, then something needs to be done to publicly make people aware of this dire situation . There are too many of us that HAD to receive the only treatment available not knowing the life changing after effects would be so devastating! We God bless you all! Keep speaking up. The squeaky wheel gets the grease!