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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 6 hours ago | Replies (787)
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@verena

Hello,

I was just diagnosed with a fast growing spindle cell myxosarcoma in my thigh. I am meeting with the sarcoma team in Milwaukee in a week. I had a chest CT today and a PET scan on Wednesday. This came so fast, I have not come up for air. I have not slept in days. I am not even sure what questions to ask. I am glad I found this group.

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Replies to "Hello, I was just diagnosed with a fast growing spindle cell myxosarcoma in my thigh. I..."
elcee | @elcee | Dec 12, 2023

I was seen for leiomyosarcoma at Froedert in Milwaukee earlier this year. Expert clinicians. Hope they can help you

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joan450 | @joan450 | Dec 14, 2023

It moves fast, but take a deep breath, bring a friend with a note paper to meetings, and get second opinions if you want. You Dr. can recomend someone for the second opinion.

Hang in, stay on it, and take action when you have one to take.

I wish you the best....

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