← Return to Research on COVID 19 vax causing Essential Thrombocythemia?

Discussion

Research on COVID 19 vax causing Essential Thrombocythemia?

Blood Cancers & Disorders | Last Active: Aug 16 7:23am | Replies (86)
Comment receiving replies
@mdterp76

I think I may be one of the people with the Jak2 mutation that lay dormant for many years--at least 30 years. I was first identified with "sticky" blood at age 39. My endocrinologist told me to take one baby aspirin a day and it never came up again for 30 years. In January 2023, at age 69, after 5 COVID shots in 18 months, my platelets had gone from 400 to 700K. I do believe the COVID shots were the trigger, but I have found no evidence to support it. I even contacted MPN specialist, Dr.Reuben Mesa, who said there does not appear to be a connection at this time. I take HU, 500 mg, 2x week, daily baby aspirin, and daily iron. I am not anemic, but I have low iron in my blood work. I wish someone would collect data on this. I tried to leave this information on the CDC website as a side effect, but could not figure out how to leave the feedback. If anyone has info on leaving the feedback, I'd like to know and follow through. Thank you and I wish all of you stable health and a long life with this illness.
Karla

Jump to this post

Replies to "I think I may be one of the people with the Jak2 mutation that lay dormant..."
nohrt4me | @nohrt4me | Dec 11, 2023

The VAERS (vax adverse reaction) site is here: https://vaers.hhs.gov/ It's pretty easy to use. I reported an adverse reaction to the first Shingrix shot.

Doctors are usually dismissive of correlations, but they often chart it so that if they hear it enough they report or investigate. But clinicians don't like diverting from their protocols--or the hospital systems they work for don't let them. Opens them up to lawsuits if they diverge from prescribed standard of care.

For example, I asked a dermatologist if worsening rosacea could be ET-related. He said no, gets worse with age, you're old, ergo ... Then he said I was the second patient with ET who asked him that, asked me more about ET, and wrote it down in my chart. So I planted a seed, even though his standard rosacea regime has helped a lot.

I will say that platelets can take big jumps once the proliferation starts. Dad experienced this.

Interested in what your doc saw that indicated "sticky blood."

VIEW AND REPLY