This is all very new for you and I’m sure you feel a bit lost with not having much information about your diagnosis. I hope it helps you to not feel so alone in this knowing there is another member, @cmahan10, whose wife was recently diagnosed with the same form of leukemia.
I’m here for you too. We all need a lifeline… I don’t have any experience with this particular condition but I am an “almost 5 year” survivor of a very aggressive leukemia too so I know the range of emotions you’re going through.
Best wishes for good news with your PET scan this week.

You mentioned you’ll also be seeing a specialist. I’m not sure if this is your first visit with this doctor or not but I found a helpful video for you with tips on meeting a specialist to help you prep for a successful visit. https://video.search.yahoo.com/search/video?fr=yfp-t-s&ei=UTF-8&p=meeting+a+new+specialist.+mayo+clinic#id=1&vid=9b9e2a4dff6dda56d7d1d91433c8ebc9&action=click

Will you share with me what you find out?