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@ttown

Hi Everyone.....Wishing you all the warmest, family filled holidays. Since my platelet count has dropped back into the normal range, for the time being, my oncologist has me on hold at 4 hydroxyurea 500 mg a week. That part seems to be working......Getting this diagnosis of ET Jak2, was alarming..... What is new, is the intense areas of itching, that although I scratch a lot, I have never abraded my skin....I scratch through my clothes. What I do have is very big bruises after a couple of days. In addition to that, I have developed positional vertigo......very disconcerting. I just have to remember not to turn my head too fast....my eyes move back and forth as they try to focus...just rolling over in bed can cause this. I frequently am dizzy without the vertigo feeling.....more light headed type of feeling. I guess I need to get used to this as it is part (possibly) of the side effects for some of us who are taking the hydroxyurea. At least my platelet count is normal, so I am not looking at clot or stroke possibilities. I am so grateful! Blessings to all of you during this holiday season, and thank you for this very informative and helpful website. Ginger

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Replies to "Hi Everyone.....Wishing you all the warmest, family filled holidays. Since my platelet count has dropped back..."

I have been having problems with itching too. My upper back actually feels like something is crawling under my skin.
I was diagnosed with ET in 2014. I am currently on 500 mgs everyday and two on Mondays and Thursdays. I also take a baby asprin everyday. The bruising is awful. I have been able to keep my count under 800 sometimes as low as 600.
When I was diagnosed it was called a blood disorder. I was a little taken aback when I started hearing it called a blood cancer.
No one has ever given me an explanation of why it happens.

You should report the dizziness to your Md. I am betting Physical Therapy can assist with the dizziness, especially if you say your eyes are moving back and forth when you turn in bed. There are various treatments the PT can give you.