Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@harleymama

Yes, icing is one of the treatment modalities I use.

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@harleymama Im sorry to say but most Dr,s dont know how to help us with pain we have to invent things for ourselves Here are some things I use for pain back and elsewhere Tens unit for muscle relaxer ,heating pad Epsom salts soak ,hot shower, ice pain creams,pain patch ,Lidocane gel or rollon maybe you have used these but just my suggestions .I do use Tramadol at night .Find a Dr that will perscribe for you I also have back injections also at times

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@lioness

@harleymama Im sorry to say but most Dr,s dont know how to help us with pain we have to invent things for ourselves Here are some things I use for pain back and elsewhere Tens unit for muscle relaxer ,heating pad Epsom salts soak ,hot shower, ice pain creams,pain patch ,Lidocane gel or rollon maybe you have used these but just my suggestions .I do use Tramadol at night .Find a Dr that will perscribe for you I also have back injections also at times

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I have tried all of the above and use them. Sometimes I wonder why I continue to use them since they don't work but I keep after it. I've lost count of how many injections I've received over the last few years. I cannot find a doctor to prescribe anything for pain although I do get Baclofen for muscle spasms. They will prescribe other medications like an antidepressant, Neurontin, Lyrica, etc. but they have all given me terrible side effects from migraines to vertigo. I just don't tolerate many medications. I did use Tramadol for a bit. It was enough to take the edge off and get me through my work day but when they wouldn't renew that, I had to quit my job. I think the CDC and Joint Commission has intimidated the medical community over pain medications, to the point that it has had a negative impact on patients.

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@lioness

@harleymama Im sorry to say but most Dr,s dont know how to help us with pain we have to invent things for ourselves Here are some things I use for pain back and elsewhere Tens unit for muscle relaxer ,heating pad Epsom salts soak ,hot shower, ice pain creams,pain patch ,Lidocane gel or rollon maybe you have used these but just my suggestions .I do use Tramadol at night .Find a Dr that will perscribe for you I also have back injections also at times

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Some very good options for pain control, @lioness.

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@harleymama

I have tried all of the above and use them. Sometimes I wonder why I continue to use them since they don't work but I keep after it. I've lost count of how many injections I've received over the last few years. I cannot find a doctor to prescribe anything for pain although I do get Baclofen for muscle spasms. They will prescribe other medications like an antidepressant, Neurontin, Lyrica, etc. but they have all given me terrible side effects from migraines to vertigo. I just don't tolerate many medications. I did use Tramadol for a bit. It was enough to take the edge off and get me through my work day but when they wouldn't renew that, I had to quit my job. I think the CDC and Joint Commission has intimidated the medical community over pain medications, to the point that it has had a negative impact on patients.

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@harleymama you are so right there fortunately I have a good rheumatologist who perscribes it for me When I fractured my back Dr had me on 4 a day for along time it also helped with my fibromyalgia now I take just one at night wish you could ,it would ease it.Maybe a orthopaedic Dr with all your issues would?Just a suggestion

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Hi, My name is FranLe and I have had back issues all my life. At 54 I no longer work. I am lucky enough that my husband is able to handle our finances on his own. I feel guilty about that at times. I have friends that at times wonder why I don’t work yet they know my health struggles. Even my current physical therapist says if she didn’t know the mess I am, she would never know. I stay positive no matter what for the most part. It’s not always easy and I do get down about it but I keep pushing forward. Eventually I will have to have neck surgery. I currently need both shoulders operated on but I’m holding off because I have a beautiful 1 yr old granddaughter that needs her Mimi’s love and attention. I suffer terribly after picking her up but I wouldn’t have it any other way. I’m currently trying to come to terms with yet a new medication that I was prescribed that is called Duloxetine. I believe it is the generic form of Cymbalta. I filled the prescription but haven’t started it yet as the print out of possible side effects are concerning to me. Anyone have success with this medicine?

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@franle

Hi, My name is FranLe and I have had back issues all my life. At 54 I no longer work. I am lucky enough that my husband is able to handle our finances on his own. I feel guilty about that at times. I have friends that at times wonder why I don’t work yet they know my health struggles. Even my current physical therapist says if she didn’t know the mess I am, she would never know. I stay positive no matter what for the most part. It’s not always easy and I do get down about it but I keep pushing forward. Eventually I will have to have neck surgery. I currently need both shoulders operated on but I’m holding off because I have a beautiful 1 yr old granddaughter that needs her Mimi’s love and attention. I suffer terribly after picking her up but I wouldn’t have it any other way. I’m currently trying to come to terms with yet a new medication that I was prescribed that is called Duloxetine. I believe it is the generic form of Cymbalta. I filled the prescription but haven’t started it yet as the print out of possible side effects are concerning to me. Anyone have success with this medicine?

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@franle Welcome to this wonderful compassionate people until everyone chimes in I,d like to tell you that everyone is different in what meds will help them Cymbalta may help you ,but not another person I for one couldn't take it but there are others on here that swear by it ,this is my experience with it , you maybe different .Everyone is a pain warrior on here with different problems .I have back @ fibromyalgia I,m sure others will choose in.take care

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Good Morning All!!
It's been 6 weeks since I had my X-Lift Fusion surgery for L3/4. I went to the neurosurgeon for my check-up. I'm not quite where I should be, which is a surprise since I usually heal faster than expected. Anyway, another 6 weeks of wearing a back brace and taking all the precautions. One good thing added is the ability for me to go into my pool. I live in Florida and it is still in the mid to upper 80s and sunny. I can't swim, but at least I can walk around. The doctor does not want me to us any assistive walking devices. That's harder than it sounds since I've been using the walker since surgery (as per the physical therapist in the hospital said) and a cane before that. He told me that if I fall it would be a disaster. Needless to say my hubby and I are now nervous. So, for now, I try to walk unaided only in the house and use the walker outside.

The pain has eased up except in the mornings! The pain when I try to sleep, getting up and in the morning is HORRIBLE. I not only have pain, but I get spasms, too. I rarely take pain pills but I do take meds for the spasms. When I went to the surgeon, I told him it would have been helpful to be told what to expect. I told him, too, that because I had no problems with the cervical surgery, I expected the same with this surgery. He said not everyone has the issues I do. I suggested that telling patients what they might expect would be very helpful!

Tomorrow I go to the pain doctor for my leg. He will be doing a test tomorrow and next week to see if the procedure he wants to do will help. Sadly, the pain in my leg is not helping with my overall pain. I hope these tests will prove that the procedure should help.

Beyond that, last night, Halloween, was so sweet. I live in Florida so I am able to sit outside to hand out the candy. The kids are as sweet as the candy.

Hoping for a pain-free day for us all!
Ronnie (GRANDMAr)

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@franle

Hi, My name is FranLe and I have had back issues all my life. At 54 I no longer work. I am lucky enough that my husband is able to handle our finances on his own. I feel guilty about that at times. I have friends that at times wonder why I don’t work yet they know my health struggles. Even my current physical therapist says if she didn’t know the mess I am, she would never know. I stay positive no matter what for the most part. It’s not always easy and I do get down about it but I keep pushing forward. Eventually I will have to have neck surgery. I currently need both shoulders operated on but I’m holding off because I have a beautiful 1 yr old granddaughter that needs her Mimi’s love and attention. I suffer terribly after picking her up but I wouldn’t have it any other way. I’m currently trying to come to terms with yet a new medication that I was prescribed that is called Duloxetine. I believe it is the generic form of Cymbalta. I filled the prescription but haven’t started it yet as the print out of possible side effects are concerning to me. Anyone have success with this medicine?

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@franle
Welcome.
I cannot address Cymbalta but I would like to chime in on the other things you mentioned.
First, congrats on your granddaughter.
I know how you feel, since my 3 grands were born during the most painful part of my life. I too would not do anything that wouldn't let me pick up and hold my babies. Regardless what I was told, I wouldn't listen when it came to them.
I would like to tell you that I had my 2 discs replaced with artificial ones in my cervical spine. The recovery was surprisingly easy and I am very happy I did it. I've also had shoulder surgery, twice (my fault....didn't listen to the doc and started lifting weights). The first time I did not get my range of motion back. The second time, only months later, I went for PT first and the recovery was so much better. I mention all this just as a frame of reference. Of course, all people heal differently.
Lastly, I am sorry that people do not understand your health struggles. Sadly, unless people can 'see' your struggle, they assume things are not so bad or there is a bit of exaggeration. It is the same issue many people with psychological problems (depression and/or anxiety) face. Ignore, if possible, others, and continue with what works for you. You know you and you have the support of your hubby, that's what counts.
Keep up with your positivity, it certainly helps to make things better than they would be otherwise.

Here's to a pain-free day!!!!
Ronnie (GRANDMAr)

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@franle

Hi, My name is FranLe and I have had back issues all my life. At 54 I no longer work. I am lucky enough that my husband is able to handle our finances on his own. I feel guilty about that at times. I have friends that at times wonder why I don’t work yet they know my health struggles. Even my current physical therapist says if she didn’t know the mess I am, she would never know. I stay positive no matter what for the most part. It’s not always easy and I do get down about it but I keep pushing forward. Eventually I will have to have neck surgery. I currently need both shoulders operated on but I’m holding off because I have a beautiful 1 yr old granddaughter that needs her Mimi’s love and attention. I suffer terribly after picking her up but I wouldn’t have it any other way. I’m currently trying to come to terms with yet a new medication that I was prescribed that is called Duloxetine. I believe it is the generic form of Cymbalta. I filled the prescription but haven’t started it yet as the print out of possible side effects are concerning to me. Anyone have success with this medicine?

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I started Cymbalta about 4 months ago and it has really helped me—both pain and energy. All meds have side effects, but not everyone experiences them, and it’s very unlikely for anyone to experience all of them. What’s more, if the side effects are too much for you or if the meds aren’t helping, you can stop. Sounds like you are having a tough time, why not give it a try?

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@franle

Hi, My name is FranLe and I have had back issues all my life. At 54 I no longer work. I am lucky enough that my husband is able to handle our finances on his own. I feel guilty about that at times. I have friends that at times wonder why I don’t work yet they know my health struggles. Even my current physical therapist says if she didn’t know the mess I am, she would never know. I stay positive no matter what for the most part. It’s not always easy and I do get down about it but I keep pushing forward. Eventually I will have to have neck surgery. I currently need both shoulders operated on but I’m holding off because I have a beautiful 1 yr old granddaughter that needs her Mimi’s love and attention. I suffer terribly after picking her up but I wouldn’t have it any other way. I’m currently trying to come to terms with yet a new medication that I was prescribed that is called Duloxetine. I believe it is the generic form of Cymbalta. I filled the prescription but haven’t started it yet as the print out of possible side effects are concerning to me. Anyone have success with this medicine?

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Hello @franle

I have had good success with Duloxetine/Cymbalta. I started using it a year ago, and it took several months before the benefit began to be noticed, so don't give up hope if you do not notice a difference right away. It works wonderfully for me for both pain and sleep. I take it the morning, rather than at night.

If you decide to give it a try, will you post and let me know how you are doing with it?

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