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Has anyone had IVIG Infusions for Neuropathy?
Neuropathy | Last Active: Oct 3 7:57am | Replies (491)Comment receiving replies
Hello @cyp238ress. I noticed your interest in IVIG so you will see that I have moved your post to join others already discussing this topic. You can find your post here now:
- Has anyone had IVIG Infusions for Neuropathy?: https://connect.mayoclinic.org/discussion/ivig-infusions/
Members such as @harley22 @katrina123 and @jfn have all recently commented and @kle has also responded to your post.
Why do you suspect a genetic component and if your suspicions are correct, does your neurologist think IVIG will be successful?
Replies to "Hello @cyp238ress. I noticed your interest in IVIG so you will see that I have moved..."
https://medlineplus.gov/download/genetics/condition/small-fiber-neuropathy.pdf
Here is the information on small fiber neuropathy and genetics
I’m on IVIG infusions for CIDP and MGUS neuropathy. It was like a miracle for me, taking me from a wheelchair, only able to pivot, to walking with a walker in the first of five doses. Neuropathy has many causes and I think IVIG works best for neuropathy associated with autoimmune conditions. The cause of the neuropathy should always be sought and treated accordingly. For idiopathic or hereditary neuropathy, a short trial of IVIG seems reasonable and can be abandoned if it makes no difference. Anyone with neuropathy of unknown cause should be checked for monoclonal gammopathy, an under recognized condition not routinely screened for. (MGUS)
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Already been through several rounds of IVIG with no improvement in my symptoms.
As a result it was discontinued.