Chronic Pain members - Welcome, please introduce yourself

You certainly have had a lot going on since your last appointment, @migizii
I'm glad that you shared that. I'm also glad that your husband is so supportive of your trips to Mayo.

@migizii You,ve had a run of bad luck sorry about your house hope you could save some things You will in time get your 2nd breath and forge ahead Keep posting you have a good husband

Hi, my name is Daun and I am new here. So grateful to be part of a group that offers support, shares, etc. I have had Fibromyalgia since 2006. Thank God I have had the same wonderful doctor through all of this. I desire to offer support to those who have been newly diagnosed or have been traveling this path for as long or longer. There are so many physical, mental, spiritual aspects, even mourning periods that must be validated. Believe it or not, my former boyfriend (now my housemate/friend), was diagnosed with Fibro in 2015. We met in 2013. How ironic, I know. At least we have been a source of support for each other.

Hi, my name is Daun and I am new here. So grateful to be part of a group that offers support, shares, etc. I have had Fibromyalgia since 2006. Thank God I have had the same wonderful doctor through all of this. I desire to offer support to those who have been newly diagnosed or have been traveling this path for as long or longer. There are so many physical, mental, spiritual aspects, even mourning periods that must be validated. Believe it or not, my former boyfriend (now my housemate/friend), was diagnosed with Fibro in 2015. We met in 2013. How ironic, I know. At least we have been a source of support for each other.

I've had chronic pain for several years now. In 2012 I had flank pain, which was found to be intermittent hydronephrosis. I also had a tumor on the same kidney. I had a partial right nephrectomy in 2012 and ureter reconstruction in 2013. In 2015 I started having chronic pain in my sacrum, hips, and legs. I was diagnosed with bilateral labral tears and was told all my pain was from muscle guarding. Fix my hips and cure my pain. I had labral repair on my left hip but the pain kept getting worse. A year and a half later, after being referred to the pain clinic, I was diagnosed with a gluteus medius tendon tear so I had another surgery to fix that. My pain still has not gotten better. It got to the point that I couldn't stand and I couldn't sit. I was in too much pain. I had a job where I stand most of the day. I was missing so much work I was getting in trouble with my employer. Over this period I have had numerous injections and images trying to find the source of my pain. I've been in physical therapy since 2015. I've had deep tissue massage, chiropractic adjustments, dry needling, etc. Nothing helps. I've been diagnosed with bulging discs in my lumbar spine and some mild stenosis, sacroiliac joint dysfunction, and myofascial pain disorder. Unfortunately I can't take Tylenol, Aleve, Ibuprofen, or aspirin since I get rebound migraines. I try to take a few once in a while and then it takes months for them to go away with Naratriptan. My primary doctor won't prescribe anything else for pain, although my former doctor prescribed Tramadol which took the edge off the pain. In June I had to quit my job since I couldn't stand any more for any length of time without debilitating pain. Fortunately, I got desk job in July. I don't know how to support myself without a job. I'm still very uncomfortable even with sitting. I use a coccyx cushion. I had to change my therapist due to the new insurance carrier's network. The new therapist has come to the conclusion that my pain may be due to scarring from the kidney surgeries causing scar tissue that is tethering some nerves and so now I am getting myofascial release. Perhaps my hip and leg pain is referred from those nerves. Does anyone have a similar history and if so, what treatments have provided relief?

I've had chronic pain for several years now. In 2012 I had flank pain, which was found to be intermittent hydronephrosis. I also had a tumor on the same kidney. I had a partial right nephrectomy in 2012 and ureter reconstruction in 2013. In 2015 I started having chronic pain in my sacrum, hips, and legs. I was diagnosed with bilateral labral tears and was told all my pain was from muscle guarding. Fix my hips and cure my pain. I had labral repair on my left hip but the pain kept getting worse. A year and a half later, after being referred to the pain clinic, I was diagnosed with a gluteus medius tendon tear so I had another surgery to fix that. My pain still has not gotten better. It got to the point that I couldn't stand and I couldn't sit. I was in too much pain. I had a job where I stand most of the day. I was missing so much work I was getting in trouble with my employer. Over this period I have had numerous injections and images trying to find the source of my pain. I've been in physical therapy since 2015. I've had deep tissue massage, chiropractic adjustments, dry needling, etc. Nothing helps. I've been diagnosed with bulging discs in my lumbar spine and some mild stenosis, sacroiliac joint dysfunction, and myofascial pain disorder. Unfortunately I can't take Tylenol, Aleve, Ibuprofen, or aspirin since I get rebound migraines. I try to take a few once in a while and then it takes months for them to go away with Naratriptan. My primary doctor won't prescribe anything else for pain, although my former doctor prescribed Tramadol which took the edge off the pain. In June I had to quit my job since I couldn't stand any more for any length of time without debilitating pain. Fortunately, I got desk job in July. I don't know how to support myself without a job. I'm still very uncomfortable even with sitting. I use a coccyx cushion. I had to change my therapist due to the new insurance carrier's network. The new therapist has come to the conclusion that my pain may be due to scarring from the kidney surgeries causing scar tissue that is tethering some nerves and so now I am getting myofascial release. Perhaps my hip and leg pain is referred from those nerves. Does anyone have a similar history and if so, what treatments have provided relief?

@harleymama
So sorry for the horrible pain you are living with.
Have you talked to a physician about getting a pain pump? Since you have so many limitations, this might be a good choice since the amount of medicine that goes into your body is a lot less than injections and oral meds.
I certainly don't know your financial situation, but have you thought about going on SSI? You would start to collect social security and you would also get Medicare (and Medicaid if you need it).

I hope you find an answer soon!
Ronnie (GRANDMAr)

@harleymama One of the things I have is a fracture back ,bulging disc and spondylitis .n back it has impinged my nerves going into legs burning pain so I fou d putting an ice bag on relieves it so give it a try Lower back and thighs hope you,ll get some relief.